Education About Disabilities/Diagnoses

Description: Programs that offer workshops, discussion groups, activities and other types of training that sensitize participants to people with disabilities, visible differences, and mental health and mental illness. Includes information for individuals and families with these conditions, as well as information to help others experience what it is like to have a disability, and share techniques for positive communication and interaction with people who have disabilities. (Adapted from AIRS PH-6200.1850 Disability Awareness Programs )

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Disclaimer...
Note: Service listings do not represent a recommendation or endorsement by the Medical Home Portal staff or its sponsoring organizations; nor do they reflect any assessment of the quality or value of a listed Service.

NV

Las Vegas, NV

8990 Spanish Ridge Avenue
Suite 100
Las Vegas, NV 89148
Phone: 702-737-1919
Address: 8990 Spanish Ridge Avenue
Suite 100
Las Vegas, NV 89148
Phone: 702-737-1919
Fax: 702-792-2780
Services Provided: Educational, Emotional, and Financial Support to families who have a child diagnosed with cancer.
Original Source: Nevada Suggest Providers Queue
Last Updated: 2/21/2019
Organization Name: Southern Nevada Health District
Address: 280 South Decatur Boulevard
Las Vegas, NV 89107
Phone: 702-759-0800
Email: nursing@snhdmail.org
Eligibility: Diagnosed with HIV.
Wheelchair Accessible: Yes
Services Provided: Offers confidential program that helps people HIV develop a plan to notify sex or needle partners about possible exposure; education on disease transmission and prevention; assist with eligibility for Ryan White program and linkage to HIV provider; offers nurse case management and HIV provider visits for up to six months.
Original Source: Nevada 2-1-1
Last Updated: 9/13/2018
Organization Name: JDRF Southern Nevada
Address: 5542 South Fort Apache Road
Las Vegas, NV 89148
Phone: 702-732-4795
Fax: 702-732-1635
Email: nevada@jdrf.org
Wheelchair Accessible: Yes
Services Provided: Provides networking and educational services including advocacy, research worldwide, fundraising activities, printed materials, brochures, and community outreach for type 1 diabetes.
Original Source: Nevada 2-1-1
Last Updated: 6/6/2019
5542 South Fort Apache Road
Suite 100
Las Vegas, NV 89148
Phone: 702-732-4795
Address: 5542 South Fort Apache Road
Suite 100
Las Vegas, NV 89148
Phone: 702-732-4795
Fax: 702-732-1635
Services Provided: Diabetes Research
Original Source: Nevada 2-1-1
Last Updated: 6/5/2019
3711 Sunset Road
Las Vegas, NV 89120
Phone: 702-735-8434
Address: 3711 Sunset Road
Las Vegas, NV 89120
Phone: 702-735-8434
Fax: 702-735-8431
Services Provided: Supportive Education
Original Source: Nevada Suggest Providers Queue
Last Updated: 2/21/2019
Organization Name: Nevada Hands and Voices
Address: Las Vegas, NV
Phone: 702-363-3323
Email: info@nvhandsandvoices.org
Eligibility: Children ages birth to 21 with hearing loss or communication access issues.
Services Provided: Provides training and education seminars, methodology choices (hearing aids or cochlear implants), early intervention programs, and networks with parents whose children have hearing loss.
Original Source: Nevada 2-1-1
Last Updated: 5/13/2019

Pahrump, NV

Organization Name: Nevada Council of the Blind
Address: 1370 West Basin Avenue
Pahrump, NV 89041
Phone: 702-383-0600
Email: rickthepolak@embarqmail.com
Eligibility: Visually impaired or friend/family of.
Services Provided: Provides support, resources, open discussion, education about blindness, and scholarship opportunities for vision impaired. Meets at Pahrump Senior Center on the last Wednesday of each month.
Original Source: Nevada 2-1-1
Last Updated: 6/6/2019

Reno, NV

Organization Name: American Cancer Society
Address: 630 Sierra Rose Drive
Suite 1A
Reno, NV 89511
Toll Free Phone: 800-228-2345
Services Provided: Nationwide community-based voluntary organization dedicated to eliminating cancer as a major health risk through research, education, advocacy.
Original Source: Nevada Suggest Providers Queue
Last Updated: 6/5/2019
155 Country Estates Circle
Reno, NV 89511
Phone: 775-322-7065
Organization Name: American Heart Association
Address: 155 Country Estates Circle
Reno, NV 89511
Phone: 775-322-7065
Fax: 775-322-8959
Wheelchair Accessible: Yes
Services Provided: Provides community education through online access or brochures requested by phone on the warning signs of heart attacks and strokes, discussion topics such as nutrition, exercise, and tobacco use.
Original Source: Nevada 2-1-1
Last Updated: 6/6/2019
10615 Double R Boulevard
Suite 100
Reno, NV 89521
Phone: 775-829-5864
Organization Name: American Lung Association of Nevada
Address: 10615 Double R Boulevard
Suite 100
Reno, NV 89521
Phone: 775-829-5864
Toll Free Phone: 800-586-4872
Services Provided: Fights lung disease in all its forms, with special emphasis on asthma, tobacco control and environmental health.
Original Source: Nevada Suggest Providers Queue
Last Updated: 6/5/2019
Organization Name: Head Injury Association of Northern Nevada
Address: Reno, NV
Phone: 775-830-4261
Email: info@hiann.org
Eligibility: Anyone with a traumatic or acquired brain injury , caregivers, family, friend, and professionals serving TBI clients
Services Provided: Head Injury Association of Northern Nevada offers over 50 programs and events during the year, typically 4-6 per month, for our members. These services include cognitive training classes, physical fitness programs with personal trainers, art classes, yoga classes, trips to the Shakespeare Festival at Lake Tahoe, attending sporting events, and a variety of other educational and social activities. The cost of membership is $25 per year and all events are offered to members and their caregivers/family at no additional cost. Head Injury Association of Northern Nevada offers support services to traumatic brain injury survivors and their family at these events in various ways including discussions during selected meetings and introductions to Board Members with specific experiences in different areas of interest.&nbsp;<br />&nbsp;
Original Source: Nevada 2-1-1
Last Updated: 8/14/2019
55 Reactor Way
Reno, NV 89502
Phone: 775-829-7400
Organization Name: High Sierra Inudtries - Corporate Office
Address: 55 Reactor Way
Reno, NV 89502
Phone: 775-829-7400
Fax: 775-829-7403
Services Provided: HSI's mission is to research, develop, and implement evidence-based learning systems for people with disabilities and for those who support them. HS-WARC encourages every individual served to discover and lead a fulfilling and independent life. They do this by delivering the best training, development, and assessment services.
Original Source: Nevada Suggest Providers Queue
Last Updated: 2/21/2019
Organization Name: Nevada Diabetes Association (NDA)
Address: 18 Stewart Street
Reno, NV 89501
Phone: 775-856-3839
Toll Free Phone: 800-379-3839
Fax: 775-348-7591
Services Provided: NDA offers services including camp, programs, diabetes awareness programs, information, English and Spanish material resources and referrals.
Original Source: Nevada Suggest Providers Queue
Last Updated: 6/5/2019
6490 South McCarran Boulevard
Reno, NV 89509
Phone: 775-351-1959
Organization Name: Nevada Hands and Voices
Address: 6490 South McCarran Boulevard
Reno, NV 89509
Phone: 775-351-1959
Email: info@nvhandsandvoices.org
Eligibility: Children ages birth to 21 with hearing loss or communication access issues.
Services Provided: Provides training and education seminars, methodology choices (hearing aids or cochlear implants), early intervention programs, and networks with parents whose children have hearing loss.
Original Source: Nevada 2-1-1
Last Updated: 8/30/2018

Sparks, NV

870 Steneri Way
Suite 101
Sparks, NV 89431
Phone: 775-453-9262
Organization Name: JUSTin HOPE Foundation
Address: 870 Steneri Way
Suite 101
Sparks, NV 89431
Phone: 775-453-9262
Email: info@justinhope.org
Eligibility: First Responders
Services Provided: We train community law enforcement and firefighters on learning the signs of Autism and other neurodevelopmental disorders. We provide them with tools they need to effectively interact with individuals with disabilities. We also maintain a Dispatch Registry that allows first responders to access pertinent information about the individual before responding to the emergency situation.&nbsp;
Original Source: Nevada 2-1-1
Last Updated: 8/14/2019

Nationwide

555 E. Wells Street, Ste 1100
Milwaukee, WI 53202
Phone: 414-918-3014
Address: 555 E. Wells Street, Ste 1100
Milwaukee, WI 53202
Phone: 414-918-3014
Fax: 414-276-2146
Services Provided: A multidisciplinary scientific society devoted to the study of cerebral palsy and other childhood onset disabilities, to promoting professional education for the treatment and management of these conditions, and to improving the quality of life for people with these disabilities.
Original Source: MedHome Portal
Last Updated: 3/22/2018
4340 East-West Highway Suite 350
Bethesda, MD 20814
Phone: 301-657-0881
Address: 4340 East-West Highway Suite 350
Bethesda, MD 20814
Phone: 301-657-0881
Toll Free Phone: 800-328-8476
Email: info@autism-society.org
Services Provided: We provide advocacy, education, information and referral, support, and community at national, state and local levels through our strong nationwide network of Affiliates.

Disability Awareness Programs
Specialized Information and Referral
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
Haworth Hall, Room 313
1200 Sunnyside Avenue
Lawrence, KS 66045-7534
Phone: 785-864-7600
Organization Name: University of Kansas
Address: Haworth Hall, Room 313
1200 Sunnyside Avenue
Lawrence, KS 66045-7534
Phone: 785-864-7600
Fax: 785-864-7605
Services Provided: The Beach Center on Disability is a multidisciplinary research and training center committed to making a significant and sustainable positive difference in the quality of life of individuals and families affected by disability and the professionals who support them. Internationally-recognized leaders in research on and interventions to promote the self-determination of children, youth, and adults with (and without) disabilities.
Provider Profiles: Based at the University of Kansas.
Original Source: MedHome Portal
Last Updated: 1/10/2019
730 N Franklin St, Suite 501
Chicago, IL 60654-7225
Phone: 800-826-3632
Address: 730 N Franklin St, Suite 501
Chicago, IL 60654-7225
Phone: 800-826-3632
Eligibility: Contact for specific information.
Services Provided: Educates patients, professionals, and the public concerning the nature of depressive, bipolar disorder (also known as manic depression) or mood disorder. Maintains over 1000 support groups around the country.
Provider Profiles: National
Original Source: MedHome Portal
Last Updated: 12/18/2017
8301 Professional Place East Ste 230
Landover, MD 20785-2356
Phone: 301-459-3700
Address: 8301 Professional Place East Ste 230
Landover, MD 20785-2356
Phone: 301-459-3700
Toll Free Phone: 800-332-1000
Fax: 301-577-2684
Email: ContactUs@efa.org
Eligibility: Individuals with epilepsy, their families and friends.
Services Provided: Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Learn about epilepsy, types of seizures, triggers, diagnosis, treatment, etc. Offers a seizure diary app self-management tool.
Provider Profiles: Spanish Speakers Phone number: 866-748-8008
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/6/2019
CB 8180
Chapel Hill, NC 27599-8180
Phone: 919-966-2622
Organization Name: University of North Carolina at Chapel Hill
Address: CB 8180
Chapel Hill, NC 27599-8180
Phone: 919-966-2622
Services Provided: Enhances the lives of children and families through interdisciplinary research, technical assistance, professional development, and implementation science. FPG is one of the nation's oldest and largest multidisciplinary centers devoted to the study of young children and their families. About 275 researchers, implementation and technical assistance specialists, staff, and students work on more than 75 projects related to developmental disabilities; early care and education; physical and social health; professional development, technical assistance, and implementation science; public policy and evaluation; and racial, ethnic, linguistic, cultural, and socioeconomic diversity.
Original Source: MedHome Portal
Last Updated: 1/10/2019
Address: 110 West Road Ste 300
Towson, MD 21204
Phone: 800-296-4433
Fax: 410-321-9165
Email: frontdesk@primaryimmune.org
Eligibility: Individuals with primary immunodeficiency diseases and their families
Services Provided: A national patient organization dedicated to improving the diagnosis, treatment, and quality of life of persons with primary immunodeficiency diseases through advocacy, education, and research. Learn about primary immunodeficiencies, it's diagnosis, treatment; and living with PI, at different ages, getting support, finding a physician, insurance, school, etc.

IDF Physician Finder to locate a physician by location, last name, specialty and more.
Original Source: MHP-Nationwide
Last Updated: 7/11/2019
806 West Adams Boulevard
Los Angeles, CA 90007
Phone: 213-748-5481
Address: 806 West Adams Boulevard
Los Angeles, CA 90007
Phone: 213-748-5481
Fax: 213-749-1651
Eligibility: Infants and preschool children with hearing loss.
Services Provided: A leading diagnostic and education center for young children with hearing loss. It provides free, parent-centered services. The Clinic offers worldwide family services, local family services, professional education, preschool, and hearing testing. The Clinic has over 60 years of expertise in the spoken language option, called "oralism," serving 25,000 families each year.

Hearing Screening
Parent Support Groups
Preschools
Online courses
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
Address: 2121 K Street NW, Suite 200
Washington, DC 20037
Phone: 202-349-1155
Toll Free Phone: 800-558-0121
Fax: 202-349-1156
Email: info@lupus.org
Services Provided: Provides education and support services to people affected by lupus. We collaborate with experts to provide clear, easy-to-use information, programs and resources to help you navigate every step of your journey with lupus. An online community, an expert series, a resource database, a nurse and certified health educator call line.
Original Source: MHP-Nationwide
Last Updated: 8/6/2019
24 South 1100 East, Suite 205
Salt Lake City, UT 84102
Phone: 801-328-8080
Organization Name: Bateman Horne Center of Excellance
Address: 24 South 1100 East, Suite 205
Salt Lake City, UT 84102
Phone: 801-328-8080
Fax: 1-866-555-1122
Email: support@batemanhornecenter.org
Eligibility: None
Wheelchair Accessible: Complete
Services Provided: Leading the way in the medical advancement and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia. Formerly the Fatigue Consultation Clinic (FCC) and the Organization for Fatigue & Fibromyalgia Education & Research (OFFER), BHC been committed to the education of medical providers for more than 25 years.
Provider Profiles: Lucinda Bateman M.D.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 3/21/2019
Address: 375 Kings Highway North
Cherry Hill, NJ 08034
Toll Free Phone: 800-532-7667
Fax: 856-661-9797
Email: MSquestions@mymsaa.org
Eligibility: Individuals with MS
Services Provided: Ongoing support and direct services.

Individual Advocacy
Information and Referral
Equipment Distribution Program by application
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/8/2019
6520 North Andrews Avenue
Fort Lauderdale, FL 33309-2132
Address: 6520 North Andrews Avenue
Fort Lauderdale, FL 33309-2132
Toll Free Phone: 800-225-6495
Wheelchair Accessible: Ramps
Services Provided: Nonprofit organization, our primary mission is to ensure the best quality of life for those coping with MS by providing comprehensive support and educational programs.

Disease/Disability Information
Information Lines
Information and Referral
Medical Information Lines
Specialized Information and Referral
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
9609 Medical Center Drive
Bethesda, MD 20892-9760
Phone: 800-422-6237
Address: 9609 Medical Center Drive
Bethesda, MD 20892-9760
Phone: 800-422-6237
Fax: (719) 776-3132
Email: cancergovstaff@mail.nih.gov
Eligibility: None
Wheelchair Accessible: Complete
Services Provided: A free public service of the National Cancer Institute providing the latest most accurate cancer information for patients, their families, the general public, and health professionals in a personalized confidential manner.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 7/2/2019
Address: 3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747
TDD: 866-569-1162
Email: healthinfo@niddk.nih.gov
Eligibility: Contact for specific information.
Services Provided: NIDDK research creates knowledge about and treatments for diseases that are among the most chronic, costly, and consequential for patients, their families, and the Nation. Offers clinical trials, financial assistance for researchers, health information, and publications.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 7/30/2019
Address: 31 Center Dr., MSC 2320
Bethesda, MD 20892
Phone: 800-241-1044
TDD: 800-241-1055
Eligibility: communication disorders
Services Provided: Information specialists provide callers with fact sheets, resources and referrals to other organizations and agencies. Topics include hearing, balance, smell and taste, voice, speech, and language disorders.
Original Source: MedHome Portal
Last Updated: 7/23/2019
Address: 55 Kenosia Avenue
PO Box 1968
Danbury, CT 06810
Phone: 203-744-0100
Toll Free Phone: 800-634-7207
Fax: 203-263-9938
Eligibility: Persons with a rare disease.
Services Provided: NORD is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. Co-pay Assistance Program.
Patient Assistance Program, RareCare: helps patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.
Original Source: MedHome Portal
Last Updated: 8/6/2019
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
Phone: 201-250-8440
Address: 401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
Phone: 201-250-8440
Toll Free Phone: 800-714-5437
Fax: 201-250-8435
Email: info@parentprojectmd.org
Services Provided: Information about Duchenne Muscular Dystrophy for families, including responding to a new diagnosis, finding care, and genetic testing. PPMD’s Decode Duchenne genetic testing program provides free genetic testing and counseling to people in the Duchenne or Becker muscular dystrophy community who otherwise could not afford genetic testing.

Runs Certified Duchenne Care Center Program, which supports standardized comprehensive care for people with Duchenne. Also promotes research and organizes advocacy initiatives.
Original Source: MHP-Nationwide
Last Updated: 5/9/2019
Address: PO Box 5930
Midlothian, VA 23112
Phone: 800-366-7741
Toll Free Phone: 800-366-7741
Fax: 804-744-9388
Email: psiops@uneedpsi.org
Eligibility: Financial assistance for insured and uninsured patients with chronic illnesses. Assistance is focused on a limited number of around 20 diseases, and the list always changes.
Services Provided: Provides online disease and treatment information as well as limited financial assistance for patients with chronic illnesses who are struggling to keep up with expensive premiums and copayments. Available programs and specific illnesses are regularly updated. Financial assistance includes: subsidizing the cost of health insurance premiums; providing pharmacy and treatment copayment assistance; assisting with Medicare Part D co-insurance; providing travel assistance for transportation reimbursement.
Provider Profiles: Online resources
Original Source: MHP-Nationwide
Last Updated: 7/11/2019
42-40 Bell Blvd Suite 205
Bayside, NY 11361-2820
Phone: 718-224-2999
Address: 42-40 Bell Blvd Suite 205
Bayside, NY 11361-2820
Phone: 718-224-2999
Toll Free Phone: 888-486-8738
Fax: 718-279-9596
Email: support@tourette.org
Services Provided: A national organization serving children, individuals and families affected by Tourette Syndrome (TS.) Comprehensive online information includes six online CME/CNE programs, programs on Recognition, Diagnosis & Treatment, and training for Allied Professionals and Educators. The website also contains resources for patients and families.
Original Source: MedHome Portal
Last Updated: 8/6/2019

TX

Dallas, TX

7272 Greenville Avenue
Dallas, TX 75231
Phone: 800-242-8721
Address: 7272 Greenville Avenue
Dallas, TX 75231
Phone: 800-242-8721
Email: strokeconnection@heart.org
Eligibility: Stroke patients.
Services Provided: Provides support and information for people who have suffered strokes.
Original Source: Nevada 2-1-1
Last Updated: 6/6/2019