Education About Disabilities/Diagnoses

Provides awareness, education, nutrition, coping strategies, conferences and community outreach. Also offers referrals and educational information on Lupus.

Nevada's Central Directory for Early Intervention provides information, resources, and referral services to inform and educate families of infants and toddlers with disability, disabilities or special health care needs, and the general public.

Offers compassionate counseling by registered nurses, respiratory therapists, and certified tobacco treatment specialists.

Free weekly support groups: NAMI Family Support Group for family members/friends of adults living with mental illness. NAMI Connection Recovery Support Group for adults living with mental illness. No prior registration required to attend support groups. Free Education courses offered for family members/friends, parents/caregivers, and adults living with mental illness. Call office for more information or to register. Meetings held via Zoom.

Provides training and education seminars, methodology choices (hearing aids or cochlear implants), early intervention programs, and networks with parents whose children have hearing loss.

Provides a nationwide, community-based, voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer and saving lives through research, education, advocacy, and service.

Provides a nationwide, community-based, voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer and saving lives through research, education, advocacy, and service.

Diabetes prevention through walking club, nutrition programs, and exercise program.

Provides training and education seminars, methodology choices (hearing aids or cochlear implants), early intervention programs, and networks with parents whose children have hearing loss.

Fights lung disease in all its forms, with special emphasis on asthma, tobacco control and environmental health.

Provides networking and educational services including advocacy, research worldwide, fundraising activities, printed materials, brochures, and community outreach for type 1 diabetes.

Provides community education through online access or brochures requested by phone on the warning signs of heart attacks and strokes, discussion topics such as nutrition, exercise, and tobacco use.

Head Injury Association of Northern Nevada offers over 50 programs and events during the year, typically 4-6 per month, for our members. These services include cognitive training classes, physical fitness programs with personal trainers, art classes, yoga classes, trips to the Shakespeare Festival at Lake Tahoe, attending sporting events, and a variety of other educational and social activities. The cost of membership is $25 per year and all events are offered to members and their caregivers/family at no additional cost. Head Injury Association of Northern Nevada offers support services to traumatic brain injury survivors and their family at these events in various ways including discussions during selected meetings and introductions to Board Members with specific experiences in different areas of interest.

SNBFON is a nonprofit organization within the NV sickle cell community. We believe at times our SC warriors may be weakened physically, mentally and spiritually but through a strong community-based organization they possess the ability to tap into strength, hope, faith. 

Our mission is to  improve not only the quality but quantity of life for children and adults living with Sickle Cell (SC) and related blood disorders. We desire for them to live longer and without limitations.

The effects of SC are also experienced by parents, family, friends, and community members. Therefore, we encourage participation from anyone with a passion and desire to grow and develop opportunities to decrease the stigmas & misunderstandings related to SC. 

A special focus is on the SC teen population who are transitioning to adult healthcare and the adult population currently struggling to access quality healthcare from providers knowledgeable in current evidence based SC treatments.

Our mission is to #MakeSickleCellPopular by increasing awareness, educating, and advocating for long term changes for the SCD population of Nevada to improve Equity and access to care for those affected by SCD and other Rare Diseases while also addressing health disparities. 

Our vision is to be a community leader in advocating for those affected by Sickle Cell. Our vision will be achieved by bringing communities together through social events that provide support, education, resources and awareness for Sickle Cell Disease.

Provides resources and information on the American Disabilities Act through technical assistance and on our main website.

Promotes the health and well-being of people with Down syndrome and their families through evidence-based care, innovative research opportunities, and collaborative educational experiences.

Services Include:

• Care coordination
• Resources referrals
• Participation in research studies

Information specialists provide callers with fact sheets, resources and referrals to other organizations and agencies. Topics include hearing, balance, smell and taste, voice, speech, and language disorders.

A national organization serving children, individuals and families affected by Tourette Syndrome (TS) and other tic disorders. Comprehensive online information includes six online CME/CNE programs, programs on Recognition, Diagnosis & Treatment, and training for Allied Professionals and Educators. The website also contains resources for patients and families.

Find a Provider: Directory of experts in Tourette Syndrome that can be filtered by age group, clinical expertise (specialty), and location.

Tourette Syndrome Centers of Excellence: List of Centers of Excellence in the care of Tourette Association, recognized by the Tourette Association of America as promoting the highest level of care, research, education & training, and advocacy & awareness for these conditions.

A multidisciplinary scientific society devoted to the study of cerebral palsy and other childhood onset disabilities, to promoting professional education for the treatment and management of these conditions, and to improving the quality of life for people with these disabilities.

AACPDM Medical Professional Directory offers patients and families the option to search for members by locations, specialty and/or patient type.

The website also offers continuing education for professionals and educational resources for individuals and families.

Mission: Propionic Acidemia Foundation is dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals.

Organization offers educational resources for families and patients, a patient registry, conferences and trainings, online support groups, and more.

The SPD Foundation offers online courses, resources, advocacy, and support groups for professionals, parents, and others interested in helping individuals with Sensory Processing Disorder.

Offers support to children and families through interdisciplinary research, technical assistance, professional development, and implementation science. FPG is one of the nation's oldest and largest multidisciplinary centers devoted to the study of young children and their families.

Online Resources Include:

• A variety of clinical and patient resources
• Educational events for clinicians
• Find a Pediatric Endocrinologist: Search the Pediatric Endocrine Society membership list.
• Upcoming Camps: Directory of specialty camps for kids, including Diabetes Camps, Turner Syndrome Camps, and Transgender Youth and Teen Camps. Not run or endorsed by the Pediatric Endocrine Society.

Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Learn about epilepsy, types of seizures, triggers, diagnosis, treatment, etc. Offers a seizure diary app self-management tool.  Offers support groups for people with epilepsy.

Spanish-language line: 866-748-8008

Starkey Hearing Foundation uses the gift of hearing to reflect caring and sharing and improve the lives of individuals, families and communities.

COVID-19 UPDATE: Following all CDC and State guidelines.

• Hearing Aids

• Disease/Disability Information
• Health/Disability Related Support Groups

• Communicable Disease Control
• Vaccine Information

• Internet Information Resources
• Disease/Disability Information
• Specialized Information and Referral
• Medical Information Services

• Specialized Information and Referral
• Medical Care Expense Assistance

NIDDK research creates knowledge about and treatments for diseases that are among the most chronic, costly, and consequential for patients, their families, and the Nation. Offers clinical trials, financial assistance for researchers, health information, and publications.

Improves the quality of life for all people affected by lupus through programs of research, education, support, and advocacy.

• Health/Disability Related Support Groups
• Disease/Disability Information
• Voluntary Health Organizations

Chapter Finder: Find support and connection in your community.

Nationwide community-based voluntary organization dedicated to eliminating cancer as a major health risk through research, education, advocacy.

Provides advocacy, education, information and referral, support for the Autism community at national, state and local levels through a nationwide network of Affiliates.

Provides ongoing support and direct services to individuals with multiple sclerosis.

Services Include:

• Individual Advocacy
• Information and Referral
• Equipment Distribution Program by application

The Stuttering Foundation provides resources, services and support to those who stutter and their families as well as support for research into the causes of stuttering.

Free packets of informative brochures, referral lists for fluency specialists and a catalog of resources are available.

The Foundation publishes 30 books, 41 DVD videos and 26 brochures on stuttering. Over 800,000 publications are distributed each year to those who stutter, their families, speech language pathologists, pediatricians, family physicians, clinics, day care centers, libraries and others concerned with the problem of stuttering.

National Eye Institute is the principal agency for conducting and supporting vision research aimed at improving the prevention, diagnosis, treatment and rehabilitation of diseases that affect the eye and vision

The MSUD Family Support Group membership includes families and professionals worldwide.

Services Include:

• Providing opportunities for support and personal contact for those with MSUD and their families.
• Distributing information and raising public awareness of MS
• Strengthening the liaison between families and professionals.
• Encouraging newborn screening programs and research for MSUD.

The Childhood RND Educational Foundation is a 501(c)(3) non-profit organization dedicated to educating health professionals and families who deal with amplified musculoskeletal pain syndromes (AMPS) such as fibromyalgia, complex regional pain syndrome (CRPS), RSD, RND, neuropathic pain and myofascial pain. Services include:
-Educational materials about a variety of pain issues
-[https://stopchildhoodpain.org/faqs/what-hospitals-offer-this-treatment-program/ Directory of pediatric AMPS treatment programs.]

Provides online resources and information related to Attention Deficit Hyperactive Disorder (ADD and ADHD) for children, adults, parents, schools, and more.

Provides resources for individuals with thinking and learning differences, including ADHD, dyslexia, and dyscalculia. Information for parents, educators, and young adults. Also offers a workplace program for individuals in the workplace.

Offerings include articles and online resources, information about how to get assistance, and an online community.

Connecting Families UCD Foundation provides resources, information, and support groups for families and individuals with Urea cycle disorders (UCDs).

UCD Family Camps: Connecting Families UCD Foundation hosts annual camps for families affected by a Urea Cycle Disorder. UCD Family Camps are held in different locations across the US so that all families around the country may have an opportunity to attend. Camps are 100% free of charge to UCD families and siblings (any age). All costs of foods (low-pro), lodging, and shuttling to and from airport to camp site is provided as well.

Support group for Fatty Oxidation Disorders. Raises funds for Educational and Networking Services and Programs. Medical information, including information about newborn screening, and support resources.

Resources, information, research information, and support for HCU.

Information about PKU, research, advocacy, and resources.

Find a Clinic by state, zip code, or map.

The goals of the National Urea Cycle Disorders Foundation (NUCDF) are:

• To provide guidance and information to families and others affected by urea cycle disorders.    
• To create a caring community, networking families together for support.    
• To educate healthcare professionals on the identification, diagnosis and treatment of UCD.      
• To stimulate and support research which leads to improved quality of life for today and a CURE for tomorrow.    
• To increase public awareness on the existence of UCDs so that no child or adult ever goes undiagnosed.    
• To educate legislators on the needs of children, adults and families affected by these rare disorders.

AIDS info is a U.S. Department of Health and Human Services (DHHS) project providing information on HIV/AIDS clinical trials and treatment. It is the result of merging two previous DHHS projects: The AIDS Clinical Trials Information Service (ACTIS) and the HIV/AIDS Treatment Information Service (ATIS).

AIDS info is a central resource for current information on federally and privately funded clinical trials for AIDS patients and others infected with HIV. AIDS clinical trials evaluate experimental drugs and other therapies for adults and children at all stages of HIV infection -- from patients who are HIV positive with no symptoms to those with various symptoms of AIDS.

The American Tinnitus Association (ATA) is the national champion of tinnitus awareness, prevention, and treatment. Under its guiding principles - Education, Advocacy, Research, and Support - the ATA offers prevention programs in schools, urges governmental and private organizations to support hearing conservation, funds the nations brightest researchers, and facilitates self-help groups around the country.

The Foundation aims to improve outcomes for individuals with OCD and related disorders by:

• Providing resources and support for those affected by OCD, including individuals with OCD and related disorders, their family members, friends, and loved ones.
• Promoting awareness about OCD and related disorders to the OCD community and the general public.
• Increasing access to effective treatment through:
  • Educating mental health professionals about evidence-based treatments.
  • Providing a forum for professional collaboration and networking.
  • Supporting research into the causes of and treatments for OCD and related disorders.

Visit https://iocdf.org/find-help/ for help finding providers for patients with OCD,

Provides education for families in identifying development milestones in children from birth to 5 years old. Provides resources and supports (WIC, Early Childhood Intervention, Home-visiting, and Education Materials) for families who may have concerns and how to reach out to a local healthcare provider.

Involved in the research and development of evidence-based behavioral interventions and measurement tools designed to improve care for families and children with autism spectrum disorder (ASD). Also provides the RUBI Autism Network Parent Training program.