Disability Awareness Programs

Description: Voluntary health organizations committed to empowering and enhancing the lives of individuals with disability/diagnosis-specific conditions and their families through support and public awareness. Programs that offer workshops, discussion groups, activities and other types of training that sensitize participants to people with disabilities, help them experience what it is like to have a disability, and share techniques for positive communication and interaction with people who have disabilities. (AIRS PH-6200.1850)

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Disclaimer...
Note: Service listings do not represent a recommendation or endorsement by the Medical Home Portal staff or its sponsoring organizations; nor do they reflect any assessment of the quality or value of a listed Service.

NV

Statewide

1664 N Virginia St
MS 0285
Reno, NV 89557
Phone: 775-682-9056
Organization Name: Nevada Center for Excellence in Disabilities
Address: 1664 N Virginia St
MS 0285
Reno, NV 89557
Phone: 775-682-9056
Email: swyoungs@me.com
Services Provided: Training: General ADA training on all Titles of the ADA of 1990. Awareness regarding issues affecting people with disabilities. Completing an ADA Self-Evaluation or transition plan. Providing reasonable accommodations in the workplace.
Technical Assistance: Provides information and materials regarding guidelines and best practices. Guidance to people with disabilities regarding rights. Guidance to public and private sectors regarding responsibilities.
On-Site compliance reviews: Provides in-depth site assessments for compliance with current standards for buildings and facilities. Provides assistance for determining access to programs and services. Assists employees and employers regarding reasonable accommodation in the workplace.
Construction Document Plan Review: Reviews plans for accessibility compliance in all phases of the construction process to ensure facilities are accessible and usable by people with disabilities.
Web Accessibility: The Web is an increasingly important resource in many aspects of life: education, employment, government, commerce, health care, recreation, and more. It is essential that the Web be accessible in order to provide equal access and equal opportunity to people with disabilities.
Original Source: Nevada 2-1-1
Last Updated: 5/14/2019
Organization Name: Nevada Center for Excellence in Disabilities
Address: 1664 N Virginia St
Reno, NV 89557
Phone: 775-682-9063
Email: rovetti@unr.edu
Services Provided: Provides siblings of individuals with disabilities the information, support, and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families.
Original Source: Nevada 2-1-1
Last Updated: 5/14/2019

Carson City, NV

4126 Technology Way
Suite 100
Carson City, NV 89706
Phone: 775-687-0587
Address: 4126 Technology Way
Suite 100
Carson City, NV 89706
Phone: 775-687-0587
Fax: 775-687-0599
Email: projectassist@dhhs.nv.gov
Services Provided: Nevada's Central Directory for Early Intervention provides information, resources, and referral services to inform and educate families of infants and toddlers with disability, disabilities or special health care needs, and the general public.
Original Source: Nevada 2-1-1
Last Updated: 8/14/2019

Elko, NV

905 Railroad Street
Elko, NV 89801
Phone: 775-753-1590
Organization Name: Nevada Disability Advocacy and Law Center
Address: 905 Railroad Street
Elko, NV 89801
Phone: 775-753-1590
Fax: 775-753-1690
Email: elko@ndalc.org
Eligibility: Individuals with disabilities
Services Provided: Provides information and referral, technical assistance and training, legal and non-legal advocacy, and outreach and education.
Original Source: Nevada 2-1-1
Last Updated: 8/14/2019
Address: 525 Sunset Street
Elko, NV 89801
Phone: 775-738-9251
Services Provided: Diabetes prevention through walking club, nutrition programs, and exercise program.
Original Source: Nevada 2-1-1
Last Updated: 6/6/2019

Henderson, NV

2651 Paseo Verde Parkway
Suite 180
Henderson, NV 89074
Phone: 702-616-4901
Organization Name: Dignity Health Saint Rose Dominican Hospitals
Address: 2651 Paseo Verde Parkway
Suite 180
Henderson, NV 89074
Phone: 702-616-4901
Eligibility: Adults with chronic conditions and their caregivers.
Services Provided: A workshop given once a week for 6 weeks. The topics covered includes; techniques to deal with frustration, fatigue, pain and isolation, appropriate exercise, decision making tools, skills to communicate effectively with family, peers, and nutrition information.
Original Source: Nevada 2-1-1
Last Updated: 3/19/2019
2651 Paseo Verde Parkway
Suite 180
Henderson, NV 89074
Phone: 702-616-4901
Organization Name: Dignity Health Saint Rose Dominican Hospitals
Address: 2651 Paseo Verde Parkway
Suite 180
Henderson, NV 89074
Phone: 702-616-4901
Eligibility: Type 2 diabetes patient and their caregivers.
Services Provided: Teaches techniques to deal with symptoms of diabetes, fatigue, pain, hyper/hypoglycemia, stress, and emotional problems such as depression, anger, fear, and frustrations.
Original Source: Nevada 2-1-1
Last Updated: 3/19/2019
2651 Paseo Verde Parkway
Suite 180
Henderson, NV 89074
Phone: 702-616-4901
Organization Name: Dignity Health Saint Rose Dominican Hospitals
Address: 2651 Paseo Verde Parkway
Suite 180
Henderson, NV 89074
Phone: 702-616-4901
Eligibility: Participants must have prediabetes. This means blood sugar level is higher than normal, but not high enough to be diagnosed as diabetes.
Services Provided: Help develop healthy eating habits, increase physical activity, and help motivated. Is a CDC approved and given in sixteen weekly sessions. Lifestyle coaches are typically registered dietitians or registered nurses.
Original Source: Nevada 2-1-1
Last Updated: 3/19/2019
2651 Paseo Verde Parkway
Suite 180
Henderson, NV 89074
Phone: 702-616-4901
Organization Name: Dignity Health Saint Rose Dominican Hospitals
Address: 2651 Paseo Verde Parkway
Suite 180
Henderson, NV 89074
Phone: 702-616-4901
Services Provided: Offers one day a week class over six weeks for people with HIV. This program integrate medication regimes, techniques to deal with problems such as frustrations, fear fatigue, pain and isolation, exercising regiments, evaluating symptoms, decision-making, and sex intimacy and disclosure.
Original Source: Nevada 2-1-1
Last Updated: 3/19/2019

Las Vegas, NV

6165 South Rainbow Boulevard
Unit 12
Las Vegas, NV 89118
Phone: 702-798-5938
Organization Name: American Cancer Society
Address: 6165 South Rainbow Boulevard
Unit 12
Las Vegas, NV 89118
Phone: 702-798-5938
Fax: 702-798-0530
Eligibility: Persons with cancer.
Services Provided: Provides a nationwide, community-based, voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer and saving lives through research, education, advocacy, and service.
Original Source: Nevada 2-1-1
Last Updated: 3/19/2019
Organization Name: Deaf Centers of Nevada
Address: 8020 West Sahara Avenue
Suite 125
Las Vegas, NV 89117
Phone: 888-240-4684
Fax: 702-685-0324
Email: info@dcnv.org
Eligibility: Deaf or hard of hearing; State of Nevada residence.
Wheelchair Accessible: Yes
Services Provided: Provides youth case management services including advocacy, pre-employment screening, job coaching, and job placement. Deaf mentoring, tutoring and social events.
Original Source: Nevada 2-1-1
Last Updated: 6/6/2019
Organization Name: Southern Nevada Health District
Address: 280 South Decatur Boulevard
Las Vegas, NV 89107
Phone: 702-759-0800
Email: nursing@snhdmail.org
Eligibility: Diagnosed with HIV.
Wheelchair Accessible: Yes
Services Provided: Offers confidential program that helps people HIV develop a plan to notify sex or needle partners about possible exposure; education on disease transmission and prevention; assist with eligibility for Ryan White program and linkage to HIV provider; offers nurse case management and HIV provider visits for up to six months.
Original Source: Nevada 2-1-1
Last Updated: 9/13/2018
Organization Name: JDRF Southern Nevada
Address: 5542 South Fort Apache Road
Las Vegas, NV 89148
Phone: 702-732-4795
Fax: 702-732-1635
Email: nevada@jdrf.org
Wheelchair Accessible: Yes
Services Provided: Provides networking and educational services including advocacy, research worldwide, fundraising activities, printed materials, brochures, and community outreach for type 1 diabetes.
Original Source: Nevada 2-1-1
Last Updated: 6/6/2019
5542 South Fort Apache Road
Suite 100
Las Vegas, NV 89148
Phone: 702-732-4795
Address: 5542 South Fort Apache Road
Suite 100
Las Vegas, NV 89148
Phone: 702-732-4795
Fax: 702-732-1635
Services Provided: Diabetes Research
Original Source: Nevada 2-1-1
Last Updated: 6/5/2019
2820 West Charleston Boulevard
Las Vegas, NV 89102
Phone: 702-257-8150
Organization Name: Nevada Disability Advocacy and Law Center
Address: 2820 West Charleston Boulevard
Las Vegas, NV 89102
Phone: 702-257-8150
Fax: 702-257-8170
Email: lasvegas@ndalc.org
Eligibility: Individuals with disabilities
Services Provided: Provides information and referral, technical assistance and training, legal and non-legal advocacy, and outreach and education.
Original Source: Nevada 2-1-1
Last Updated: 8/14/2019
927 South Decatur Boulevard
Las Vegas, NV 89107
Phone: 855-704-4222
Organization Name: Disability Help Center
Address: 927 South Decatur Boulevard
Las Vegas, NV 89107
Phone: 855-704-4222
Fax: 702-982-7964
Email: jackie@disabilityhelpcenternv.org
Eligibility: Individuals with a disability and unable to maintain full time employment.
Services Provided: Complete assistance and guidance during application, appeals, and hearing process of getting disability benefits through Social Security Administration.
Original Source: Nevada 2-1-1
Last Updated: 8/1/2018
5693 South Jones
Suite 118
Las Vegas, NV 89118
Phone: 702-889-9240
Address: 5693 South Jones
Suite 118
Las Vegas, NV 89118
Phone: 702-889-9240
Services Provided: Community Based Services to Adults and Children with Intellectual Developmental Disabilities
Original Source: Nevada Suggest Providers Queue
Last Updated: 2/21/2019

North Las Vegas, NV

3552 West Cheyenne Avenue
North Las Vegas, NV 89032
Phone: 800-586-4872
Organization Name: American Lung Association in Nevada
Address: 3552 West Cheyenne Avenue
North Las Vegas, NV 89032
Phone: 800-586-4872
Email: nvinfo@lungs.org
Wheelchair Accessible: Yes
Services Provided: Offers compassionate counseling by registered nurses, respiratory therapists, and certified tobacco treatment specialists.
Original Source: Nevada 2-1-1
Last Updated: 3/19/2019
North Las Vegas, NV 89031
Phone: 702-595-0313
Organization Name: Lupus of Nevada
Address: North Las Vegas, NV 89031
Phone: 702-595-0313
Email: calvinia2@cox.net
Eligibility: Individuals with lupus.
Wheelchair Accessible: Yes
Services Provided: Provides awareness, education, nutrition, coping strategies, conferences and community outreach. Also offers referrals and educational information on Lupus.
Original Source: Nevada 2-1-1
Last Updated: 5/14/2019

Pahrump, NV

1020 East Wilson Road
Pahrump, NV 89048
Phone: 775-727-9970
Organization Name: NyE Communities Coalition
Address: 1020 East Wilson Road
Pahrump, NV 89048
Phone: 775-727-9970
Email: info@nyecc.org
Services Provided: Information on stress management, diet, exercise, managing medication, communication skills, and nutrition. 
Original Source: Nevada 2-1-1
Last Updated: 3/19/2019
Organization Name: Nevada Council of the Blind
Address: 1370 West Basin Avenue
Pahrump, NV 89041
Phone: 702-383-0600
Email: rickthepolak@embarqmail.com
Eligibility: Visually impaired or friend/family of.
Services Provided: Provides support, resources, open discussion, education about blindness, and scholarship opportunities for vision impaired. Meets at Pahrump Senior Center on the last Wednesday of each month.
Original Source: Nevada 2-1-1
Last Updated: 6/6/2019

Reno, NV

Organization Name: American Cancer Society
Address: 630 Sierra Rose Drive
Suite 1A
Reno, NV 89511
Toll Free Phone: 800-228-2345
Services Provided: Nationwide community-based voluntary organization dedicated to eliminating cancer as a major health risk through research, education, advocacy.
Original Source: Nevada Suggest Providers Queue
Last Updated: 6/5/2019
630 Sierra Rose Drive
Unit A
Reno, NV 89511
Phone: 775-329-0609
Organization Name: American Cancer Society
Address: 630 Sierra Rose Drive
Unit A
Reno, NV 89511
Phone: 775-329-0609
Eligibility: Persons with cancer.
Services Provided: Provides a nationwide, community-based, voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer and saving lives through research, education, advocacy, and service.
Original Source: Nevada 2-1-1
Last Updated: 3/19/2019
10615 Double R Boulevard
Suite 100
Reno, NV 89521
Phone: 775-829-5864
Organization Name: American Lung Association of Nevada
Address: 10615 Double R Boulevard
Suite 100
Reno, NV 89521
Phone: 775-829-5864
Toll Free Phone: 800-586-4872
Services Provided: Fights lung disease in all its forms, with special emphasis on asthma, tobacco control and environmental health.
Original Source: Nevada Suggest Providers Queue
Last Updated: 6/5/2019
Organization Name: Head Injury Association of Northern Nevada
Address: Reno, NV
Phone: 775-830-4261
Email: info@hiann.org
Eligibility: Brain injury survivors, friends, family, caregivers and professionals treating brain injuries.
Services Provided: Services for brain injury survivors including cognitive classes, support groups, education, social events, volunteering, physical fitness, and raising public safety awareness.
Original Source: Nevada 2-1-1
Last Updated: 5/13/2019
Organization Name: Head Injury Association of Northern Nevada
Address: Reno, NV
Phone: 775-830-4261
Email: info@hiann.org
Eligibility: Anyone with a traumatic or acquired brain injury , caregivers, family, friend, and professionals serving TBI clients
Services Provided: Head Injury Association of Northern Nevada offers over 50 programs and events during the year, typically 4-6 per month, for our members. These services include cognitive training classes, physical fitness programs with personal trainers, art classes, yoga classes, trips to the Shakespeare Festival at Lake Tahoe, attending sporting events, and a variety of other educational and social activities. The cost of membership is $25 per year and all events are offered to members and their caregivers/family at no additional cost. Head Injury Association of Northern Nevada offers support services to traumatic brain injury survivors and their family at these events in various ways including discussions during selected meetings and introductions to Board Members with specific experiences in different areas of interest.&nbsp;<br />&nbsp;
Original Source: Nevada 2-1-1
Last Updated: 8/14/2019
4600 Kietzke Lane
Reno, NV 89502
Phone: 775-329-7180
Organization Name: National Multiple Sclerosis Society
Address: 4600 Kietzke Lane
Reno, NV 89502
Phone: 775-329-7180
Fax: 775-201-1781
Email: linda.lott@nmss.org
Eligibility: Individuals with MS and their friends/family.
Wheelchair Accessible: Yes
Services Provided: A statewide over the phone resource center for people with MS and friends/family. Provides comprehensive educational programs, financial assistance, support group information, and programs to help deal with MS.
Original Source: Nevada 2-1-1
Last Updated: 8/30/2018
1875 Plumas Street
Reno, NV 89509
Phone: 775-333-7878
Organization Name: Nevada Disability Advocacy and Law Center
Address: 1875 Plumas Street
Reno, NV 89509
Phone: 775-333-7878
Fax: 775-786-2520
Email: reno@ndalc.org
Eligibility: Individuals with disabilities
Services Provided: Provides information and referral, technical assistance and training, legal and non-legal advocacy, and outreach and education.
Original Source: Nevada 2-1-1
Last Updated: 8/14/2019
Organization Name: Nevada Diabetes Association (NDA)
Address: 18 Stewart Street
Reno, NV 89501
Phone: 775-856-3839
Toll Free Phone: 800-379-3839
Fax: 775-348-7591
Services Provided: NDA offers services including camp, programs, diabetes awareness programs, information, English and Spanish material resources and referrals.
Original Source: Nevada Suggest Providers Queue
Last Updated: 6/5/2019
18 Stewart Street
Reno, NV 89501
Phone: 775-856-3839
Address: 18 Stewart Street
Reno, NV 89501
Phone: 775-856-3839
Fax: 775-348-7591
Email: info@diabetesnv.org
Eligibility: Children ages 7 to 17 with type 1 diabetes.
Services Provided: Provides week long camps each year for children with diabetes. The camp goal is for these children develop the skills to take charge of their diabetes.
Original Source: Nevada 2-1-1
Last Updated: 3/19/2019
Reno, NV
Phone: 702-396-7859
Organization Name: People First of Nevada
Address: Reno, NV
Phone: 702-396-7859
Services Provided: People First of Nevada is a self-advocacy group run by and for individuals with developmental differences throughout Nevada. With active chapters in Reno/Sparks, Las Vegas, Fernley, Fallon, Elko Counties, Carson City, and Winnemucca as well as a state bound board.
Original Source: Nevada 2-1-1
Last Updated: 5/13/2019

Tonopah, NV

1 Frankie Street
Tonopah, NV 89049
Phone: 775-482-6561
Organization Name: NyE Communities Coalition
Address: 1 Frankie Street
Tonopah, NV 89049
Phone: 775-482-6561
Email: info@nyecc.org
Services Provided: Information on stress management, diet, exercise, managing medication, communication skills, and nutrition.&nbsp;
Original Source: Nevada 2-1-1
Last Updated: 3/19/2019

Nationwide

11130 Sunrise Valley Drive Ste 350
Reston, VA 20191
Phone: 703-234-4079
Address: 11130 Sunrise Valley Drive Ste 350
Reston, VA 20191
Phone: 703-234-4079
Fax: 703-435-4390
Email: info@aedweb.org
Eligibility: Open to the public.
Services Provided: Provides research, educational forums, publications, subject matter experts and current information on treatment and prevention of eating disorders.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 7/2/2019
Address: 3417 Volta Place NW
Washington, DC 20007
Phone: 202-337-5220
TDD: 202-337-5221
Fax: 202-337-8314
Email: info@agbell.org
Eligibility: Individuals who are deaf or hard of hearing.
Services Provided: A resource center on hearing loss and spoken language approaches and related issues. Promotes opportunities and rights of individuals who are deaf or hard of hearing to learn to use, maintain, and improve all aspects of their verbal communication, including their abilities to use residual hearing and process both spoken and written language. Offers scholarship/ financial award opportunities, membership, information, and publications.
Original Source: MedHome Portal
Last Updated: 8/6/2019
501 3rd Street NW Suite 200
Washington, DC 20001
Phone: 202-387-1968
Address: 501 3rd Street NW Suite 200
Washington, DC 20001
Phone: 202-387-1968
Fax: 202-387-2193
Services Provided: AAIDD promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/8/2019
250 Williams Street NW
Atlanta, GA 30303
Address: 250 Williams Street NW
Atlanta, GA 30303
TDD: 866-228-4327
Toll Free Phone: 800-227-2345
Wheelchair Accessible: Full Wheelchair Access
Services Provided: Dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives and diminishing suffering from cancer, through research, education, advocacy and service.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
6868 Distribution Drive, Suite 460
Beltsville, MD 20705
Phone: 301-962-3520
Address: 6868 Distribution Drive, Suite 460
Beltsville, MD 20705
Phone: 301-962-3520
Toll Free Phone: 855-858-2226
Fax: 301-962-3521
Services Provided: As a leader in the national fight against childhood cancer, we speak for the needs of families and survivors, and in doing so, we help shape policy, research, and programs, nationally and internationally, that affect the lives of cancer-stricken families today and tomorrow.

Co-Parenting Workshops
Family Support Centers/Outreach
Information and Referral
Library Services
Parent Support Groups
Support Groups
System Advocacy
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
2451 Crystal Drive, Suite 900
Arlington, VA 22202
Address: 2451 Crystal Drive, Suite 900
Arlington, VA 22202
Toll Free Phone: 800-342-2383
Services Provided: We lead the fight against the deadly consequences of diabetes and fight for those affected by diabetes. We fund research to prevent, cure and manage diabetes. We deliver services to hundreds of communities. We provide objective and credible information. We give voice to those denied their rights because of diabetes.

Website offers education, legal rights, health insurance, tips for caregivers, etc.
Original Source: MedHome Portal
Last Updated: 7/30/2019
11921 Rockville Pike Ste 300
Rockville, MD 20852
Phone: 301-881-3052
Address: 11921 Rockville Pike Ste 300
Rockville, MD 20852
Phone: 301-881-3052
Toll Free Phone: 800-638-8299
Fax: 301-881-3311
Email: aandors@kidneyfund.org
Eligibility: Kidney patients and health care professionals.
Services Provided: Provides health information, education, financial assistance, advocacy and resource referrals for patients and health care professionals. Programs for children include summer enrichment activities and the annual Calendar Kids Art Contest. Financial assistance includes:
Health Insurance Premium Program (HIPP)
Safety Net grants
Disaster relief grants
Grants for children
Prescription drug resources
Medical Expense Assistance
Provider Profiles: Internet Information Resource
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/12/2019
55 West Wacker Drive, Suite 1150
Chicago, IL 60601
Phone: 212-315-8700
Address: 55 West Wacker Drive, Suite 1150
Chicago, IL 60601
Phone: 212-315-8700
Toll Free Phone: 800-586-4872
Services Provided: Improving lung health and preventing lung disease through Education, Advocacy and Research. With the generous support of the public, we are "Fighting for Air."
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/12/2019
PO Box 3355
Gettysburg, PA 17325
Phone: 717-334-7992
Address: PO Box 3355
Gettysburg, PA 17325
Phone: 717-334-7992
Toll Free Phone: 800-942-2732
Email: asdc@deafchildren.org
Services Provided: Families and professionals committed to educating, empowering, and supporting parents and families of children who are deaf or hard-of-hearing. Helps find meaningful communication options, particularly through the competent use of sign language, in their home, school, or community.
Original Source: MHP-Nationwide
Last Updated: 4/23/2019
1825 K Street NW, Suite 1200
Washington, DC 20006
Phone: 301-565-3842
Address: 1825 K Street NW, Suite 1200
Washington, DC 20006
Phone: 301-565-3842
Toll Free Phone: 800-433-5255
Fax: 301-565-3843
Eligibility: developmental disabilities
Services Provided: A national organization of and for people with developmental disabilities and their families. Website provides information about public policy; insurance products information; publications; discussion groups; employment registry; and links to local chapters and related organizations.
Original Source: MedHome Portal
Last Updated: 8/6/2019
1 East 33rd Street, 2nd Floor
New York, NY 10016
Phone: 888-772-9050
Address: 1 East 33rd Street, 2nd Floor
New York, NY 10016
Phone: 888-772-9050
Toll Free Phone: 888-288-4762
Email: familyservices@autismspeaks.org
Eligibility: People with autism, their families and caregivers.
Services Provided: Provides the latest autism science and information; funding research into the causes, prevention, treatments and a cure for autism; awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/6/2019
Organization Name: National Autism Association
Address:
Email: naa@nationalautism.org
Eligibility: Open to all.
Services Provided: An online resource of six national nonprofit autism organizations whose mission is to reduce autism-related wandering incidents and deaths. Provides an online Family Wandering Emergency Plan, Big Red Safety Box program, and Toolkits for caregivers, first-responders and teachers.
Includes "Where to find swimming lessons."
Original Source: Nationwide Suggest Providers Queue
Last Updated: 3/21/2019
PO Box 66122
Washington, DC 20035
Address: PO Box 66122
Washington, DC 20035
Email: info@autisticadvocacy.org
Services Provided: The Autistic Self Advocacy Network seeks to advance the principles of the disability rights movement with regard to autism. ASAN believes that the goal of autism advocacy should be a world in which autistic people enjoy equal access, rights, and opportunities. We work to empower autistic people across the world to take control of our own lives and the future of our common community, and seek to organize the autistic community to ensure our voices are heard in the national conversation about us. Policy advocacy toolkits, action alerts.
Original Source: MHP-Nationwide
Last Updated: 4/2/2019
Address: 275 Seventh Avenue
New York, NY 10001
Phone: 212-712-8400
Toll Free Phone: 800-813-4673
Fax: 212-712-8495
Eligibility: Cancer patients, survivors and caregivers. Liimited grants for certain expenses related to cancer treatment.
Services Provided: Provides online, telephone and in-person counseling, support groups, educational workshops, publications, financial and co-payment assistance. All services are provided by oncology social workers and world-leading cancer experts.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2019
302 West Main Street Unit 100
Avon, CT 06001
Phone: 860-753-2357
Organization Name: Cornelia de Lange Syndrome Foundation
Address: 302 West Main Street Unit 100
Avon, CT 06001
Phone: 860-753-2357
Toll Free Phone: 800-223-8355
Fax: 860-676-8337
Services Provided: A family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives. Toll free help lines, Ask the Expert emails, Connect with a Family, and more.
Provider Profiles: M - F 8:30 - 5 ET
Original Source: MHP-Nationwide
Last Updated: 8/6/2019
1703 N. Beauregard Street
Alexandria, VA 22311
Address: 1703 N. Beauregard Street
Alexandria, VA 22311
Toll Free Phone: 800-733-2258
Services Provided: With the purposes of: establish the right of persons with low vision to make full use of their vision through all available aids, services and technology; provide a mechanism through which low vision people can express their individual needs, interests and preferences; educate the general public, professionals, and low vision people themselves as to the potentialities, capabilities, and needs of low vision people; establish outreach programs to insure that all individuals with low vision have access to necessary services; promote research to prevent blindness, improve maximum utilization of sight, and improve environmental conditions and access for low vision people; support the development of and expansion of pre-service and in-service training programs to improve the quality and quantity of medical and rehabilitative low vision services.

System Advocacy
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/12/2019
Address: 733 Third Ave Ste 510
New York, NY 10017
Phone: 800-932-2423
Email: info@ccfa.org
Eligibility: Crohn's and Colitis patients, their families and medical professionals.
Services Provided: Funds research studies at major medical institutions, nurtures investigators at the early stages of their careers, finances underdeveloped areas of research, and provides educational workshops and programs related to Crohn's Disease and colitis. Provides online and telephone access to disease educational materials, support groups, physician referrals and other resources.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 3/21/2019
8301 Professional Place East Ste 230
Landover, MD 20785-2356
Phone: 301-459-3700
Address: 8301 Professional Place East Ste 230
Landover, MD 20785-2356
Phone: 301-459-3700
Toll Free Phone: 800-332-1000
Fax: 301-577-2684
Email: ContactUs@efa.org
Eligibility: Individuals with epilepsy, their families and friends.
Services Provided: Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Learn about epilepsy, types of seizures, triggers, diagnosis, treatment, etc. Offers a seizure diary app self-management tool.
Provider Profiles: Spanish Speakers Phone number: 866-748-8008
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/6/2019
Organization Name: 5p- (five p minus) Society
Address: 6229 Eckleson Street
Lakewood, CA 90713
Phone: 888-970-0777
Toll Free Phone: 888-970-0777
Fax: 562-920-5240
Eligibility: Parents and health care providers of children with Cri Du Chat syndrome.
Services Provided: Provides information, communication, and support groups to families having a child with 5P- Syndrome and to spread awareness and education to the families and their service providers. This syndrome is a chromosomal deletion disorder that results in intellectual and developmental issues in children.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 6/20/2019
4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008
Phone: 202-966-5557
Address: 4301 Connecticut Avenue NW - Suite 404
Washington, DC 20008
Phone: 202-966-5557
Fax: 202-966-8553
Services Provided: A partnership of self-help groups and professionals, Genetic Alliance has developed a series of programs designed to increase the visibility of genetics and advocacy, establish strong networks and advance important campaigns, including community-based family history. Current programs include: Advocacy ATLAS, Community Centered Family Health History, Consumer Focused Newborn Screening, and Access to Credible Genetics Resources Network
Original Source: MedHome Portal
Last Updated: 12/18/2017
2350 West Higgins Road
Hoffman Estates, IL 60169
Phone: 847-885-6147
Organization Name: Down Syndrome Achievement Centers
Address: 2350 West Higgins Road
Hoffman Estates, IL 60169
Phone: 847-885-6147
Email: info@gigisplayhouse.org
Eligibility: Individuals with Down syndrome, their families and the community
Services Provided: Through national campaigns, educational programs, and by empowering individuals with Down syndrome, their families and the community, we offer free therapeutic and educational programming to individuals with Down syndrome and their families. At GiGi’s Playhouse families are never alone. From a prenatal diagnosis to career skills, we make a lifetime commitment to remain by their side. Families are empowered with all the tools their child needs to succeed!
Original Source: MedHome Portal
Last Updated: 7/17/2018
KDES PAS-6, 800 Florida Ave, NE
Washington, DC 20002-3695
Phone: 202-651-5051
Organization Name: Gallaudet University
Address: KDES PAS-6, 800 Florida Ave, NE
Washington, DC 20002-3695
Phone: 202-651-5051
TDD: 202-651-5052
Fax: 202-651-5054
Services Provided: Responds to inquiries about a diverse range of topics related to deaf and hard-of-hearing children from infancy to age 21.
Original Source: MedHome Portal
Last Updated: 7/16/2018
400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
Phone: 650-497-8365
Address: 400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
Phone: 650-497-8365
Services Provided: Dedicated exclusively to the promotion and protection of children's health through fundraising, grantmaking and providing an informed perspective. Packard Children’s Hospital and Stanford School of Medicine supports clinical care, research, and education to improve the health of children and expectant mothers, locally and worldwide. Programs include Improving Systems of Care for Children with Special Health Care Needs and Elevating the Societal Priority of Children, providing wide-ranging, up-to-date data and research by tracking the status of California's children over time through its website, www.kidsdata.org.
Original Source: MedHome Portal
Last Updated: 2/21/2018
24 South 1100 East, Suite 205
Salt Lake City, UT 84102
Phone: 801-328-8080
Organization Name: Bateman Horne Center of Excellance
Address: 24 South 1100 East, Suite 205
Salt Lake City, UT 84102
Phone: 801-328-8080
Fax: 1-866-555-1122
Email: support@batemanhornecenter.org
Eligibility: None
Wheelchair Accessible: Complete
Services Provided: Leading the way in the medical advancement and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia. Formerly the Fatigue Consultation Clinic (FCC) and the Organization for Fatigue & Fibromyalgia Education & Research (OFFER), BHC been committed to the education of medical providers for more than 25 years.
Provider Profiles: Lucinda Bateman M.D.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 3/21/2019
Address: 222 S Riverside Plaza, Suite 1500
Chicago, IL 60606
Phone: 800-572-1717
Email: ResourceCenter@mdausa.org
Services Provided: Support services, resources, transitional services, information resources for all aspects of living with muscular dystrophy/neuromuscular disease . A web-based locator to find local services and summer camps in many states. Located at more than 150 of the top health care institutions across the United States, [https://www.mda.org/care/mda-care-centers MDA Care Centers and Affiliates] serve as the nexus for expert clinical care and medical research.
Original Source: MHP-Nationwide
Last Updated: 5/22/2019
Address:
Email: contactus@adapt.org
Services Provided: A national grass-roots community that organizes disability rights activists to engage in nonviolent direct action, including civil disobedience, to assure the civil and human rights of people with disabilities to live in freedom. Key issue is affordable, accessible, integrated housing. Access Across America is a proposal to HUD for a national program.
Original Source: MHP-Nationwide
Last Updated: 2/5/2019
220 North Green Street
Chicago, IL 60607
Phone: 630-557-1330
Address: 220 North Green Street
Chicago, IL 60607
Phone: 630-557-1330
Email: hello@anad.org
Eligibility: Eating disorders
Services Provided: Provides online research, educational forums, support groups, professional resources and current information on treatment and prevention of eating disorders. Services include ANAD recovery mentorship, ANAD support groups, ANAD annual conference, and ANAD YouTube recovery channel.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/6/2019
8630 Fenton St, Suite 820
Silver Spring, MD 20910-3819
Phone: 301-587-1788
Address: 8630 Fenton St, Suite 820
Silver Spring, MD 20910-3819
Phone: 301-587-1788
TDD: 301-587-1789
Fax: 301-587-1791
Eligibility: deaf and hard of hearing
Services Provided: Safeguards the civil rights of deaf and hard of hearing Americans. As a national federation of state associations, individual members, and organizational and corporate affiliates, the advocacy work includes accessibility, education, employment, healthcare, mental health, rehabilitation, technology, telecommunications, and transportation. Website features advocacy information and resources.
Provider Profiles: NAD Youth Leadership Camp (YLC) is a four-week intensive educational program for high school students. Camp Taloali, Stayton, Oregon.
Original Source: MedHome Portal
Last Updated: 8/6/2019
55 Chapel Street, Ste 200
Newton, MA 02458
Phone: 617-924-9997
Address: 55 Chapel Street, Ste 200
Newton, MA 02458
Phone: 617-924-9997
Fax: 617-924-9998
Eligibility: Anyone interested in brain tumor research, treatment or funding opportunities.
Services Provided: Finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 7/1/2019
820 1st Street NE, Suite 740
Washington, DC 20002
Phone: 202-408-9514
Address: 820 1st Street NE, Suite 740
Washington, DC 20002
Phone: 202-408-9514
TDD: 202-408-9521
Fax: 202-408-9520
Eligibility: People with disabilities
Services Provided: Guards against abuse, advocating for basic rights, and ensuring accountability in health care, education, employment, housing, transportation, and within the juvenile and criminal justice systems.Works on behalf of the federally mandated Protection and Advocacy P&A Systems and the Client Assistance Programs CAP for individuals with disabilities.

Assistive Technology Equipment
Information and Referral
Library Services
System Advocacy
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
Address: 30 East 33rd Street
New York, NY 10016
Phone: 800-622-9010
Toll Free Phone: 800-622-9010
Services Provided: The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease. Information about kidney disease. A peer mentor support program. Self management app for food choices.
Original Source: MHP-Nationwide
Last Updated: 8/13/2019
Organization Name: Substance Abuse and Mental Health Services Administration (SAMHSA)
Address: 1 Choke Cherry Road
Rockville, MD 20857
Phone: 800-662-4357
Eligibility: For users of mental health services and their families, the general public, policy makers, providers, and the media.
Services Provided: The Center for Mental Health Services, within SAMHSA, leads Federal efforts to improve prevention and mental health treatment services for all Americans.
Information Center staff members are skilled at listening and responding to questions from the public and professionals. The staff quickly directs callers to Federal, State, and local organizations dedicated to treating and preventing mental illness. The Information Center also has extensive online and print publications, and information on Federal grants, conferences, and other events.
Provider Profiles: Use the locator website to filter your search: adolescent, substance, payment/insurance accepted, emergency, etc.
Original Source: MedHome Portal
Last Updated: 7/30/2019
PO Box 521618
Salt Lake City, UT 84152
Phone: 385-645-4626
Address: PO Box 521618
Salt Lake City, UT 84152
Phone: 385-645-4626
Email: info@needsbeyondmedicine.org
Eligibility: Cancer patients
Services Provided: Provides financial assistance grants and online educational materials / workshops for cancer patients. Financial assistance is for non-medical expenses, such as transportation, rent and other living costs. Does not provide medical advice, diagnosis or treatment.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 3/21/2019
Address: 8161 Normandale Blvd.
Bloomington, MN 55437
Phone: 952-838-9000
Toll Free Phone: 800-537-2237
Services Provided: Champions for children with disabilities, Parent Advocacy Coalition for Educational Rights, PACER Center expands opportunities and enhances the quality of life of children and young adults with disabilities and their families. PACER is staffed primarily by parents of children with disabilities and works in coalition with 18 disability organizations. A significant Learning Center, Resources, and specifically for Students and Young Adults.
Original Source: MedHome Portal
Last Updated: 8/2/2018
1500 Rosecrans Avenue, Suite 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Address: 1500 Rosecrans Avenue, Suite 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Toll Free Phone: 877-573-9971
Fax: 310-725-0029
Email: info@pancan.org
Eligibility: Cancer patients, survivors, and their families
Services Provided: Provides research, patient support, community outreach and government advocacy. Raises money for direct private funding of research. Supports individuals and communities all across the country in working together to raise awareness and funds to develop more effective treatment options for better patient outcomes. We create a sense of hope and community so no one has to face pancreatic cancer alone.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 7/23/2019
Address: 4600 Devitt Drive
Cincinnati, OH 45246
Phone: 800-818-7388
Toll Free Phone: 800-818-7388
Email: admin@rettsyndrome.org
Services Provided: An organization comprised of parents and friends of those diagnosed with Rett syndrome, providing the latest medical information, aggressively funding the most promising research, offering meaningful support, raising public awareness and advocating for all living with Rett syndrome. Lists resources and clinics by state, national resources, and clinical trials. Resources include: Care Guides, Communication, Adaptive Equipment and Funding, School and Day Programs, Adolescence, Planning for the Future.
Original Source: MedHome Portal
Last Updated: 8/6/2019
1825 K Street NW, Suite 600
Washington, DC 20006
Phone: 202-776-0406
Address: 1825 K Street NW, Suite 600
Washington, DC 20006
Phone: 202-776-0406
Toll Free Phone: 800-872-5827
Fax: 202-776-0414
Services Provided: UCP and its 64 affiliates have a mission to advance the independence, productivity and full citizenship of people with a broad range of disabilities by providing services and support to more than 176,000 children and adults every day. UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams.
Original Source: Nationwide Suggest Providers Queue
Last Updated: 8/8/2019

NY

New York, NY

39 Broadway
New York, NY 10006
Phone: 800-465-4837
Organization Name: American Liver Foundation
Address: 39 Broadway
New York, NY 10006
Phone: 800-465-4837
Fax: 212-483-8179
Email: info@liverfoundation.org
Services Provided: Provides national helpline to answer questions about liver disease wellness and can help find resources such as specialists and support groups.
Original Source: Nevada 2-1-1
Last Updated: 8/14/2019

TX

Dallas, TX

7272 Greenville Avenue
Dallas, TX 75231
Phone: 800-242-8721
Address: 7272 Greenville Avenue
Dallas, TX 75231
Phone: 800-242-8721
Email: strokeconnection@heart.org
Eligibility: Stroke patients.
Services Provided: Provides support and information for people who have suffered strokes.
Original Source: Nevada 2-1-1
Last Updated: 6/6/2019