Specialized Information Resources

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Programs that maintain information about community resources that are appropriate for a specific target group or human services sector (for example, youth programs or addiction services) and which link individuals who are in need of specialized services with appropriate resources and/or which provide information about community agencies and organizations that offer specialized services. (AIRS TJ-3000.8000)

645 Sierra Rose Drive
Suite 106
Reno, NV 89511
Phone: 775-786-1881
Service Categories:
Address:
645 Sierra Rose Drive
Suite 106
Reno, NV 89511
Phone: 775-786-1881
Email: northernnevada@jdrf.org
Eligibility:

Person affected by type 1 diabetes.

Services Provided: Provides research and advocacy for persons with type 1 diabetes.
Source: Nevada 2-1-1
Last Updated: 6/7/2021
3100 North Tenaya Way
Las Vegas, NV 89128
Phone: 702-962-5021
Service Categories:
Organization Name: MountainView Hospital
(Show others in Organization)
Address:
3100 North Tenaya Way
Las Vegas, NV 89128
Phone: 702-962-5021
Wheelchair Access: Yes
Services Provided: Provides Consult-a-Nurse free hotline staffed with registered nurses. Answers health questions and assist in finding a physician. Cannot diagnose over the phone.
Source: Nevada 2-1-1
Last Updated: 6/8/2021
Confidential
North Las Vegas, NV 89031
Phone: 702-595-0313
Service Categories:
Organization Name: Lupus of Nevada
(Show others in Organization)
Address:
Confidential
North Las Vegas, NV 89031
Phone: 702-595-0313
Email: calvinia2@cox.net
Wheelchair Access: Yes
Eligibility:

Individuals with lupus.

Services Provided:

Provides awareness, education, nutrition, coping strategies, conferences and community outreach. Also offers referrals and educational information on Lupus.

Source: Nevada 2-1-1
Last Updated: 7/29/2021
400 Edison Way
Reno, NV 89502
Phone: 775-482-3377
Service Categories:
Organization Name: Regional Emergency Medical Services Authority
(Show others in Organization)
Address:
400 Edison Way
Reno, NV 89502
Phone: 775-482-3377
Fax: 775-858-5720
Wheelchair Access: Yes
Services Provided: Offers 24 hour Nurse HealthLine, speak to a registered nurse about medical and health questions about symptoms, medications, allergies, or conditions; plus determine if you should be seen by a medical provider right away or wait.
Source: Nevada 2-1-1
Last Updated: 6/6/2019
1000 East William Street
Suite 105
Carson City, NV 89701
Phone: 775-687-0587
Service Categories:
Address:
1000 East William Street
Suite 105
Carson City, NV 89701
Phone: 775-687-0587
Fax: 775-687-0599
Email: projectassist@dhhs.nv.gov
Services Provided:

Nevada's Central Directory for Early Intervention provides information, resources, and referral services to inform and educate families of infants and toddlers with disability, disabilities or special health care needs, and the general public.

Source: Nevada 2-1-1
Last Updated: 6/9/2021
1050 East Flamingo Road
Suite S102
Las Vegas, NV 89119
Phone: 775-624-7117
Service Categories:
Organization Name: Immunize Nevada
(Show others in Organization)
Address:
1050 East Flamingo Road
Suite S102
Las Vegas, NV 89119
Phone: 775-624-7117
Email: info@immunizenevada.org
Eligibility:

Residents of Nevada.

Services Provided: Provides information and referral for immunization clinics. Also offers education and resources for immunization. Immunize Nevada does WebIZ immunization look up. Please send an email to request official immunization records.
Source: Nevada 2-1-1
Last Updated: 6/7/2021
855 East 4th Street
Reno, NV 89502
Phone: 775-624-7117
Service Categories:
Organization Name: Immunize Nevada
(Show others in Organization)
Address:
855 East 4th Street
Reno, NV 89502
Phone: 775-624-7117
Email: info@immunizenevada.org
Eligibility:

All residents of Nevada.

Services Provided: Provides information and referral for immunization clinics. Also offers education and resources for immunization. Immunize Nevada does WebIZ immunization look up. Please send an email to request official immunization records.
Source: Nevada 2-1-1
Last Updated: 6/7/2021
4600 Kietzke Lane
Suite K225
Reno, NV 89502
Phone: 775-329-7180
Service Categories:
Organization Name: National Multiple Sclerosis Society
(Show others in Organization)
Address:
4600 Kietzke Lane
Suite K225
Reno, NV 89502
Phone: 775-329-7180
Fax: 775-201-1781
Email: jennifer.wise@nmss.org
Wheelchair Access: Yes
Eligibility:

Individuals with MS and their friends/family.

Services Provided: A statewide over the phone resource center for people with MS and friends/family. Provides comprehensive educational programs, financial assistance, support group information, and programs to help deal with MS.
Source: Nevada 2-1-1
Last Updated: 6/8/2021
755 North Roop Street
Suite 211
Carson City, NV 89706
Phone: 775-887-0417
Service Categories:
Address:
755 North Roop Street
Suite 211
Carson City, NV 89706
Phone: 775-887-0417
Fax: 775-887-3562
Email: info@nvpca.org
Services Provided:

Training and technical assistance, policy, outreach, and education for Community Health Centers, social service groups, safety net providers, and social workers.

Source: Nevada 2-1-1
Last Updated: 6/9/2021
2621 Northgate Lane
Suite 62
Carson City, NV 89706
Phone: 775-884-2269
Service Categories:
Address:
2621 Northgate Lane
Suite 62
Carson City, NV 89706
Phone: 775-884-2269
Fax: 775-884-2730
Email: info@carson-family.org
Wheelchair Access: Yes
Eligibility:

School age children.

Services Provided: Provides referrals, assessment, and case management to youth and families that have truancy and chronic absenteeism in school.
Source: Nevada 2-1-1
Last Updated: 6/17/2021
Reno, NV
Phone: 702-486-3587
Service Categories:
Organization Name: State of Nevada Office for Consumer Health Assistance
(Show others in Organization)
Address:
Reno, NV
Phone: 702-486-3587
Fax: 702-486-3586
Email: cha@govcha.nv.gov
Eligibility:

Nevada residents.

Services Provided: Assists consumers with researching and resolving concerns with their health plans, to include appeals, grievances, external reviews, eligibility, billing, benefit and/or claim denial. Helps injured workers navigate and get a better understanding of the Nevada workers compensation program.
Source: Nevada 2-1-1
Last Updated: 6/24/2021
3320 West Sahara Avenue
Las Vegas, NV 89101
Phone: 702-486-3587
Service Categories:
Organization Name: State of Nevada Office for Consumer Health Assistance
(Show others in Organization)
Address:
3320 West Sahara Avenue
Las Vegas, NV 89101
Phone: 702-486-3587
Fax: 702-486-3586
Email: cha@govcha.nv.gov
Eligibility:

Nevada residents.

Services Provided: Assists consumers with researching and resolving concerns with their health plans, to include appeals, grievances, external reviews, eligibility, billing, benefit and/or claim denial. Helps injured workers navigate and get a better understanding of the Nevada workers compensation program.
Source: Nevada 2-1-1
Last Updated: 6/24/2021
1535 Medical Parkway
Carson City, NV 89703
Phone: 775-445-7500
Service Categories:
Organization Name: Carson Tahoe Regional Medical Center
(Show others in Organization)
Address:
1535 Medical Parkway
Carson City, NV 89703
Phone: 775-445-7500
Email: info@carsontahoe.org
Wheelchair Access: Yes
Services Provided:

Resource center provides information on support groups, massage therapy, exercise/yoga classes, cosmesis room, our lending library, financial assistance, Merriner Cottages, clinical trials, emotional support or nutritional counseling.

Source: Nevada 2-1-1
Last Updated: 6/3/2021
Organization Name: Nevada Legal Resources Directory
(Show others in Organization)
Address:
Carson City, NV
Services Provided:

A statewide collection of free legal assistance organizations and other related resources.

Source: Nevada 2-1-1
Last Updated: 1/20/2021
3711 Sunset Road
Las Vegas, NV 89120
Phone: 702-735-8434
Service Categories:
Address:
3711 Sunset Road
Las Vegas, NV 89120
Phone: 702-735-8434
Fax: 702-735-8431
Email: info@nvccf.org
Source: Nevada Suggest Providers Queue
Last Updated: 10/5/2020
601 North Pecos Road
Las Vegas, NV 89101
Phone: 702-455-2385
Service Categories:
Organization Name: Eighth Judicial District Court
(Show others in Organization)
Address:
601 North Pecos Road
Las Vegas, NV 89101
Phone: 702-455-2385
Fax: 702-455-5551
Email: cashl@clarkcountycourts.us
Wheelchair Access: Yes
Services Provided:

Family Court assists people with divorce, annulment, child custody, visitation rights, child support, spousal support, community property division, name changes, adoption, and abuse and neglect.

Source: Nevada 2-1-1
Last Updated: 6/3/2021
4150 Technology Way
Suite 210
Carson City, NV 89706
Phone: 775-684-4200
Service Categories:
Organization Name: Nevada Division of Public and Behavioral Health (DPBH) - Maternal, Child and Adolescent Health
(Show others in Organization)
Address:
4150 Technology Way
Suite 210
Carson City, NV 89706
Phone: 775-684-4200
Services Provided: The Division of Public and Behavioral Health MCAH program provides resources, education, and creation of systems of care related to women and children, including Child and Youth with Special Health Care Needs (CYSHCN), adolescents, and families. Programs include: Teen Pregnancy Prevention- Personal Responsibility Education Program (PREP), Teen Pregnancy Prevention-Abstience Education Grant Program (AEGP), Early Hearing Detection and Intervention (EHDI), Nevada Home Visiting (MIECHV), Rape Prevention and Educatoin (RPE), Maternal Infant Program (MIP), CYSHCN, Adolescent Health and Wellness Program (AHWP).
Source: Nevada Suggest Providers Queue
Last Updated: 6/5/2019
4150 Technology Way
Suite 210
Carson City, NV 89706
Phone: 775-684-4285
Service Categories:
Organization Name: State of Nevada Bureau of Child, Family, and Community Wellness
(Show others in Organization)
Address:
4150 Technology Way
Suite 210
Carson City, NV 89706
Phone: 775-684-4285
Fax: 775-684-4245
Services Provided: Promotes, assures, and provides health education, prevention activities, quality assurances and access to health care services with emphasis on women, infants, and children, including children with special health care needs.
Source: Nevada Suggest Providers Queue
Last Updated: 6/5/2019
1950 Villanova Drive
Reno, NV 89502
Phone: 775-321-3185
Service Categories:
Organization Name: Central Reno Family Resource Center
(Show others in Organization)
Address:
1950 Villanova Drive
Reno, NV 89502
Phone: 775-321-3185
Services Provided: The mission of the Central Reno Family Resource Center is to strengthen families by building a network of support and having better access to needed resources.
Source: Nevada Suggest Providers Queue
Last Updated: 6/5/2019
2750 Elementary Drive
Reno, NV 89512
Phone: 775-337-9979
Service Categories:
Organization Name: Nothereast Reno Family Resource Center
(Show others in Organization)
Address:
2750 Elementary Drive
Reno, NV 89512
Phone: 775-337-9979
Services Provided: The mission of the Northeast Reno Family Resource Center is to strengthen families by building a network of support and having better access to needed resources.
Source: Nevada Suggest Providers Queue
Last Updated: 6/5/2019
10500 Stead Boulevard
Reno, NV 89506
Phone: 775-677-5437
Service Categories:
Organization Name: Rose McGuire North Valleys Family Resource Center
(Show others in Organization)
Address:
10500 Stead Boulevard
Reno, NV 89506
Phone: 775-677-5437
Services Provided: The mission of the Rose McGuire North Valleys Family Resource Center is to strengthen families by building a network of support and having better access to needed resources.
Source: Nevada Suggest Providers Queue
Last Updated: 6/5/2019
5550 West Flamingo Road
Las Vegas, NV 89103
Phone: 702-486-7850
Service Categories:
Address:
5550 West Flamingo Road
Las Vegas, NV 89103
Phone: 702-486-7850
Services Provided: Services for adults and children with special needs and disabilities.
Source: Nevada Suggest Providers Queue
Last Updated: 6/5/2019
720 South 7th Street
2nd Floor
Las Vegas, NV 89101
Phone: 702-486-8868
Service Categories:
Address:
720 South 7th Street
2nd Floor
Las Vegas, NV 89101
Phone: 702-486-8868
Services Provided: Services for adults and children with special needs and disabilities
Source: Nevada Suggest Providers Queue
Last Updated: 6/5/2019
1391 South Jones Boulevard
Las Vegas, NV 89146
Phone: 702-486-6200
Service Categories:
Address:
1391 South Jones Boulevard
Las Vegas, NV 89146
Phone: 702-486-6200
Services Provided: Services for adults and children with special needs and disabilities.
Source: Nevada Suggest Providers Queue
Last Updated: 6/5/2019
2850 South Lindell
Las Vegas, NV 89146
Phone: 702-932-1880
Service Categories:
Organization Name: Boys & Girls CLub
(Show others in Organization)
Address:
2850 South Lindell
Las Vegas, NV 89146
Phone: 702-932-1880
Fax: 702-932-0647
Services Provided: Family Assistance
Source: Nevada Suggest Providers Queue
Last Updated: 6/5/2019
18 Stewart Street
Reno, NV 89501
Phone: 775-856-3839
Service Categories:
Organization Name: Nevada Diabetes Association (NDA)
(Show others in Organization)
Address:
18 Stewart Street
Reno, NV 89501
Phone: 775-856-3839
Toll Free Phone: 800-379-3839
Fax: 775-348-7591
Services Provided: NDA offers services including camp, programs, diabetes awareness programs, information, English and Spanish material resources and referrals.
Source: Nevada Suggest Providers Queue
Last Updated: 6/5/2019
5542 South Fort Apache Road
Las Vegas, NV 89148
Phone: 702-732-4795
Service Categories:
Organization Name: JDRF Southern Nevada
(Show others in Organization)
Address:
5542 South Fort Apache Road
Las Vegas, NV 89148
Phone: 702-732-4795
Fax: 702-732-1635
Email: nevada@jdrf.org
Wheelchair Access: Yes
Services Provided:

Provides networking and educational services including advocacy, research worldwide, fundraising activities, printed materials, brochures, and community outreach for type 1 diabetes.

Source: Nevada 2-1-1
Last Updated: 6/7/2021
3416 Goni Road
Suite D132
Carson City, NV 89706
Phone: 775-687-4210
Service Categories:
Organization Name: Nevada Aging and Disability Services Division
(Show others in Organization)
Address:
3416 Goni Road
Suite D132
Carson City, NV 89706
Phone: 775-687-4210
Wheelchair Access: Yes
Eligibility:

Older adults, individuals with disabilities, and their caregivers with urgent or emergency needs.

Services Provided: ADSD Community Advocates increase awareness of community resources to all Nevadans across the lifespan. Creating opportunities to educate, inform, and connect those individuals seeking help to access programs and services to meet their needs. Advocates participate in outreach opportunities such as information fairs, presentations, program visits, and much more. The Community Advocates are also here to help and provide guidance as needed and can offer one-time emergency assistance to ensure sustainability and well-being of individuals. <br /><br />For individuals and families that seek to explore all options for services and programs that meet their goals and needs, the Nevada Care Connection Resource Centers have Resource Navigators to help. Use the link to find your local Resource Center.
Source: Nevada 2-1-1
Last Updated: 6/8/2021
3320 West Sahara Avenue
Suite 100
Las Vegas, NV 89102
Phone: 702-486-3545
Service Categories:
Organization Name: Nevada Aging and Disability Services Division
(Show others in Organization)
Address:
3320 West Sahara Avenue
Suite 100
Las Vegas, NV 89102
Phone: 702-486-3545
Wheelchair Access: Yes
Eligibility:

Older adults, individuals with disabilities, and their families.

Services Provided: ADSD Community Advocates increase awareness of community resources to all Nevadans across the lifespan. Creating opportunities to educate, inform, and connect those individuals seeking help to access programs and services to meet their needs. Advocates participate in outreach opportunities such as information fairs, presentations, program visits, and much more. The Community Advocates are also here to help and provide guidance as needed and can offer one-time emergency assistance to ensure sustainability and well-being of individuals. <br /><br />For individuals and families that seek to explore all options for services and programs that meet their goals and needs, the Nevada Care Connection Resource Centers have Resource Navigators to help. Use the link to find your local Resource Center.
Source: Nevada 2-1-1
Last Updated: 6/8/2021
3110 South Valley View Boulevard
Suite 201
Las Vegas, NV 89102
Phone: 702-879-8195
Service Categories:
Organization Name: Cupcake Girls
(Show others in Organization)
Address:
3110 South Valley View Boulevard
Suite 201
Las Vegas, NV 89102
Phone: 702-879-8195
Email: info@thecupcakegirls.org
Eligibility:

Any individual who is currently working or has worked in the sex industry in any capacity.

Services Provided:

Provides clients with resources for particular issues or needs by giving referrals to partners and vetted community resources. 

Source: Nevada 2-1-1
Last Updated: 6/3/2021
147 Idaho Street
Suite A
Elko, NV 89801
Phone: 775-777-3451
Service Categories:
Organization Name: Partners Allied for Community Excellence Coalition
(Show others in Organization)
Address:
147 Idaho Street
Suite A
Elko, NV 89801
Phone: 775-777-3451
Email: brittney@pacecoalition.org
Eligibility:

To be eligible for cribs or car seats you will have to have Medicaid or a qualifying need.

Services Provided: Connects people to available resources, provides classes in youth mental health first aid, adult mental health first aid, safeTALK, and Cribs for Kids. We have cribs and cars seats available to those who qualify and when available through funding. This program is working on developing a Youth Coalition in the communities PACE serves. The Community Youth Coalition will provide youth a peer to peer opportunity to have a voice in the community and effect change in the community.
Source: Nevada 2-1-1
Last Updated: 6/17/2021
3111 South Maryland Parkway
Second Floor
Las Vegas, NV 89109
Phone: 702-984-0015
Service Categories:
Address:
3111 South Maryland Parkway
Second Floor
Las Vegas, NV 89109
Phone: 702-984-0015
Email: contactus@lvacrc.org
Wheelchair Access: Elevator
Eligibility:

Anyone looking for assistance with Federal and State agencies

Services Provided: Applications for social services, business development and consulting, financial education, career building skills, housing assistance and referrals, health and medical, legal and paralegal services, senior services, Federal and State services. Virtual office and office space available.
Source: Nevada 2-1-1
Last Updated: 6/3/2021
2930 North Las Vegas Boulevard
Booth 74
North Las Vegas, NV 89030
Phone: 702-592-0056
Service Categories:
Organization Name: Puentes
(Show others in Organization)
Address:
2930 North Las Vegas Boulevard
Booth 74
North Las Vegas, NV 89030
Phone: 702-592-0056
Email: guy.g@puenteslasvegas.org
Eligibility:

All under-served communities.

Services Provided:

Provides third party solutions to those in need of wellness, educational, employement, and family support services.

Source: Nevada 2-1-1
Last Updated: 6/17/2021
1326 Silver Street
Unit B
Elko, NV 89801
Phone: 775-856-6200
Service Categories:
Organization Name: Childrens Cabinet
(Show others in Organization)
Address:
1326 Silver Street
Unit B
Elko, NV 89801
Phone: 775-856-6200
Fax: 775-856-6208
Email: mail@childrenscabinet.org
Wheelchair Access: Yes
Services Provided: Offers community programs, the goal of the agency’s founders was to create a lasting public/private partnership to address the needs of children and their families in our community.
Source: Nevada 2-1-1
Last Updated: 6/3/2021
5905 South Decatur Boulevard
Suite 13
Las Vegas, NV 89118
Phone: 775-856-6200
Service Categories:
Organization Name: Childrens Cabinet
(Show others in Organization)
Address:
5905 South Decatur Boulevard
Suite 13
Las Vegas, NV 89118
Phone: 775-856-6200
Fax: 775-856-6208
Email: mail@childrenscabinet.org
Wheelchair Access: Yes
Services Provided: Offers community programs, the goal of the agency’s founders was to create a lasting public/private partnership to address the needs of children and their families in our community.
Source: Nevada 2-1-1
Last Updated: 6/3/2021
Internet Resource
Carson City, NV 89701
Service Categories:
Organization Name: Nevada Aging and Disability Services Division
(Show others in Organization)
Address:
Internet Resource
Carson City, NV 89701
Services Provided: Provides long term care service and support options related to remaining in their own home or community based setting.
Source: Nevada 2-1-1
Last Updated: 6/8/2021
1830 East Sahara Avenue
Suite 103
Las Vegas, NV 89104
Phone: 702-631-7098
Service Categories:
Organization Name: East Valley Family Services
(Show others in Organization)
Address:
1830 East Sahara Avenue
Suite 103
Las Vegas, NV 89104
Phone: 702-631-7098
Fax: 702-733-6144
Email: info@evfs.org
Wheelchair Access: Yes
Eligibility:

Clients 60 and older and/or with a disability. Clients must complete an initial assessment before any services are provided.

Services Provided:

Offers services including:

  • Senior food programs (commodities, Senior Share, TEFAP)
  • Grandparent Respite (for grandparents 55 and older with full or partial guardianship of grandchild/children).
  • Medicare Options (including prescription drug plans and Extra help).
  • Advocacy (individuals with a disability).

**Front doors are currently locked due to the crisis. Please call for information.

Source: Nevada 2-1-1
Last Updated: 6/3/2021
4055 Virginia Street
Reno, NV 89502
Phone: 775-856-6200
Service Categories:
Organization Name: Childrens Cabinet
(Show others in Organization)
Address:
4055 Virginia Street
Reno, NV 89502
Phone: 775-856-6200
Fax: 775-856-6208
Email: mail@childrenscabinet.org
Wheelchair Access: Yes
Services Provided:

Offers community programs, the goal of the agency’s founders was to create a lasting public/private partnership to address the needs of children and their families in our community.

Source: Nevada 2-1-1
Last Updated: 6/3/2021
2527 North Carson Street
Carson City, NV 89706
Phone: 775-856-6200
Service Categories:
Organization Name: Childrens Cabinet
(Show others in Organization)
Address:
2527 North Carson Street
Carson City, NV 89706
Phone: 775-856-6200
Fax: 775-856-6208
Email: mail@childrenscabinet.org
Wheelchair Access: Yes
Services Provided:

Offers community programs, the goal of the agency’s founders was to create a lasting public/private partnership to address the needs of children and their families in our community.

Source: Nevada 2-1-1
Last Updated: 6/3/2021
North Las Vegas, NV
Phone: 702-417-3175
Service Categories:
Address:
North Las Vegas, NV
Phone: 702-417-3175
Email: info@sicklednotbroken.org
Services Provided:

SNBFON is a nonprofit organization within the NV sickle cell community. We believe at times our SC warriors may be weakened physically, mentally and spiritually but through a strong community-based organization they possess the ability to tap into strength, hope, faith. 

Our mission is to  improve not only the quality but quantity of life for children and adults living with Sickle Cell (SC) and related blood disorders. We desire for them to live longer and without limitations.

The effects of SC are also experienced by parents, family, friends, and community members. Therefore, we encourage participation from anyone with a passion and desire to grow and develop opportunities to decrease the stigmas & misunderstandings related to SC. 

A special focus is on the SC teen population who are transitioning to adult healthcare and the adult population currently struggling to access quality healthcare from providers knowledgeable in current evidence based SC treatments.

Source: NVDPBH Title V MCH - CYSHCN Program
Last Updated: 10/5/2020
Las Vegas, NV
Phone: 702-723-2286
Service Categories:
Address:
Las Vegas, NV
Phone: 702-723-2286
Services Provided:

Our mission is to #MakeSickleCellPopular by increasing awareness, educating, and advocating for long term changes for the SCD population of Nevada to improve Equity and access to care for those affected by SCD and other Rare Diseases while also addressing health disparities. 

Our vision is to be a community leader in advocating for those affected by Sickle Cell. Our vision will be achieved by bringing communities together through social events that provide support, education, resources and awareness for Sickle Cell Disease.

Source: NVDPBH Title V MCH - CYSHCN Program
Last Updated: 10/5/2020
4260 Studio Street
Las Vegas, NV 89115
Phone: 702-945-1174
Service Categories:
Address:
4260 Studio Street
Las Vegas, NV 89115
Phone: 702-945-1174
Email: ascdofnv@gmail.com
Services Provided: We enrich the lives of adults with Sickle Cell disease through educational methods, advocacy, and support: quality health care; employment and educational opportunities; mental, emotional, and physical services; social services; and pain management alternatives.
Source: Nevada 2-1-1
Last Updated: 6/3/2021
4660 South Eastern Avenue
Suite 204
Las Vegas, NV 89119
Phone: 702-723-2286
Service Categories:
Organization Name: Dreamsickle Kids Foundation
(Show others in Organization)
Address:
4660 South Eastern Avenue
Suite 204
Las Vegas, NV 89119
Phone: 702-723-2286
Email: dreamsicklekids@gmail.com
Services Provided: Offering support and education to teens and young adults that will soon be transitioning to adult care in an effort to make the change to adult care less stressful and empower young warriors with the skills needed to successfully manage their healthcare without assistance from others.
Source: Nevada 2-1-1
Last Updated: 6/3/2021
4660 South Eastern Avenue
Suite 204
Las Vegas, NV 89119
Phone: 702-723-2286
Service Categories:
Organization Name: Dreamsickle Kids Foundation
(Show others in Organization)
Address:
4660 South Eastern Avenue
Suite 204
Las Vegas, NV 89119
Phone: 702-723-2286
Email: dreamsicklekids@gmail.com
Services Provided: A program for children, parents, siblings, and caregivers impacted by SCD. This program allows children to learn about their illness and taking care of their health while also providing support to the entire family impacted by SCD (Sickle Cell) and providing connections to local resources.
Source: Nevada 2-1-1
Last Updated: 6/3/2021
Office of Public Inquiries, Windsor Park Building
6401 Security Blvd.
Baltimore, MD 21235
Service Categories:
Organization Name: Social Security Administration
(Show others in Organization)
Address:
Office of Public Inquiries, Windsor Park Building
6401 Security Blvd.
Baltimore, MD 21235
TDD: 800-325-0778
Toll Free Phone: 800-772-1213
Services Provided: This site provides information for people with disabilities who are SSI or SSDI recipients and want to work.
Provider Profiles: (SSI)
Source: MHP-Nationwide
Last Updated: 1/7/2020
Washington, DC
Service Categories:
Address:
Washington, DC
Services Provided:

Govbenefits.com is a free confidential prescreening tool for state and federal government programs. Search for benefits you may be able to receive.

Provider Profiles:

Internet resource, State and Federal resources
Partners with USA.gov

Source: MHP-Nationwide
Last Updated: 6/22/2020
30 East 33rd Street
New York, NY 10016
Phone: 800-622-9010
Service Categories:
Address:
30 East 33rd Street
New York, NY 10016
Phone: 800-622-9010
Toll Free Phone: 800-622-9010
Services Provided: The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease. Information about kidney disease. A peer mentor support program. Self management app for food choices.
Source: MHP-Nationwide
Last Updated: 8/13/2019
1433 N 1075 West, Suite 110
Farmilngton, UT 84025
Phone: 801-447-9360
Service Categories:
Address:
1433 N 1075 West, Suite 110
Farmilngton, UT 84025
Phone: 801-447-9360
Fax: 801-447-9364
Email: mail@dontshake.org
Wheelchair Access: Complete
Services Provided: A nonprofit 501(c)3 public charity with a mission to “Prevent shaken baby syndrome and promote the well-being of infants generally through the development and implementation of programs, policy and research; and to support and educate families, caregivers and professionals.”
Source: MHP-Nationwide
Last Updated: 1/7/2020
302 Jefferson Street, Ste. 110
PO Box 17646
Raleigh, NC 27605
Phone: 919-715-4092
Service Categories:
Address:
302 Jefferson Street, Ste. 110
PO Box 17646
Raleigh, NC 27605
Phone: 919-715-4092
TDD: 919-715-4092
Fax: 919-715-4093
Eligibility: Parents of children who are deaf or hard of hearing
Services Provided: Information on communication options, placement, and educational programs for parents of children who are deaf or hard-of-hearing.
Source: MHP-Nationwide
Last Updated: 1/6/2020
8630 Fenton St, Suite 820
Silver Spring, MD 20910-3819
Phone: 301-587-1788
Service Categories:
Address:
8630 Fenton St, Suite 820
Silver Spring, MD 20910-3819
Phone: 301-587-1788
TDD: 301-587-1789
Fax: 301-587-1791
Eligibility: deaf and hard of hearing
Services Provided: Safeguards the civil rights of deaf and hard of hearing Americans. As a national federation of state associations, individual members, and organizational and corporate affiliates, the advocacy work includes accessibility, education, employment, healthcare, mental health, rehabilitation, technology, telecommunications, and transportation. Website features advocacy information and resources.
Provider Profiles: NAD Youth Leadership Camp (YLC) is a four-week intensive educational program for high school students. Camp Taloali, Stayton, Oregon.
Source: Medical Home Portal
Last Updated: 8/6/2019
KDES PAS-6, 800 Florida Ave, NE
Washington, DC 20002-3695
Phone: 202-651-5051
Service Categories:
Organization Name: Gallaudet University
(Show others in Organization)
Address:
KDES PAS-6, 800 Florida Ave, NE
Washington, DC 20002-3695
Phone: 202-651-5051
TDD: 202-651-5052
Fax: 202-651-5054
Services Provided:

Responds to inquiries about a diverse range of topics related to deaf and hard-of-hearing children from infancy to age 21.

Source: MHP-Nationwide
Last Updated: 3/18/2021
35 Halsey Street, 4th floor
c/o SPAN
Newark, NJ 97102
Phone: 973-642-8100
Service Categories:
Organization Name: Center for Parent Information and Resources (CPIR)
(Show others in Organization)
Address:
35 Halsey Street, 4th floor
c/o SPAN
Newark, NJ 97102
Phone: 973-642-8100
Email: malizo@spanadvocacy.org
Eligibility: Disability-related issues for birth to 22
Services Provided: Information and referral center providing information on disabilities and disability-related issues for families, educators, and other professionals.
Provider Profiles: Internet information resources
Source: MHP-Nationwide
Last Updated: 4/23/2019
1 Choke Cherry Road
Rockville, MD 20857
Phone: 800-662-4357
Service Categories:
Organization Name: Substance Abuse and Mental Health Services Administration (SAMHSA)
(Show others in Organization)
Address:
1 Choke Cherry Road
Rockville, MD 20857
Phone: 800-662-4357
Eligibility: For users of mental health services and their families, the general public, policy makers, providers, and the media.
Services Provided: The Center for Mental Health Services, within SAMHSA, leads Federal efforts to improve prevention and mental health treatment services for all Americans.
Information Center staff members are skilled at listening and responding to questions from the public and professionals. The staff quickly directs callers to Federal, State, and local organizations dedicated to treating and preventing mental illness. The Information Center also has extensive online and print publications, and information on Federal grants, conferences, and other events.
Provider Profiles: Use the locator website to filter your search: adolescent, substance, payment/insurance accepted, emergency, etc.
Source: MHP-Nationwide
Last Updated: 1/17/2020
6001 Executive Boulevard, Room 6200, MSC 9663
Bethesda, MD 20892-9663
Phone: 866-615-6464
Service Categories:
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
6001 Executive Boulevard, Room 6200, MSC 9663
Bethesda, MD 20892-9663
Phone: 866-615-6464
TDD: 301-443-8431
Toll Free Phone: 866-615-6464
Fax: 301-443-4279
Email: nimhinfo@nih.gov
Languages Spoken: Spanish
Services Provided:

Provides mental health information on the following topics: getting help, statistics, clinical trials, outreach, research, opportunities for funding, and labs at NIMH.

Source: MHP-Nationwide
Last Updated: 9/1/2021
1825 K Street NW, Suite 1200
Washington, DC 20006
Phone: 301-565-3842
Service Categories:
Address:
1825 K Street NW, Suite 1200
Washington, DC 20006
Phone: 301-565-3842
Toll Free Phone: 800-433-5255
Fax: 301-565-3843
Eligibility: developmental disabilities
Services Provided: A national organization of and for people with developmental disabilities and their families. Website provides information about public policy; insurance products information; publications; discussion groups; employment registry; and links to local chapters and related organizations.
Source: Medical Home Portal
Last Updated: 8/6/2019
Care.com View on Map
201 Jones Road, Suite 500
Waltham, MA 02451
Service Categories:
Address:
201 Jones Road, Suite 500
Waltham, MA 02451
Services Provided: A commercial web-based resource to find private childcare, special needs care, tutors, and other types of care providers. Create an account in order to browse.
Source: MHP-Nationwide
Last Updated: 1/6/2020
957 N Plum Grove Road
Schaumburg, IL 60173
Phone: 919-459-2167
Service Categories:
Address:
957 N Plum Grove Road
Schaumburg, IL 60173
Phone: 919-459-2167
Toll Free Phone: 800-525-3243
Fax: 847-969-0460
Email: info@llli.org
Eligibility: Breastfeeding & pregnant women
Services Provided: Helping mothers worldwide to breastfeed through mother-to-mother support, encouragement, information, and education, and to promote a better understanding of breastfeeding as an important element in the healthy development of the baby and mother.
Source: MHP-Nationwide
Last Updated: 4/9/2020
4550 Montgomery Avenue, Suite 1100 N
Bethesda, MD 20814
Phone: 301-951-4422
Service Categories:
Address:
4550 Montgomery Avenue, Suite 1100 N
Bethesda, MD 20814
Phone: 301-951-4422
Toll Free Phone: 800-344-4823
Fax: 301-951-6378
Services Provided: The mission of the Cystic Fibrosis (CF) Foundation is to cure cystic fibrosis and provie all people with CF the opportunity to lead long, fulfilling lives.

The CF Foundation funds research and drug development and provides CF-related resources for families and medical providers.

[https://www.cff.org/Assistance-Services/About-Compass/What-Is-Compass/ Compass] is a personalized one-on-one service to help with the insurance, financial, legal, and other issues faced by people living with CF, their families, and their care teams.

The [https://www.cff.org/ccd/ CF Care Center] finder is a web-based location finder for cystic fibrosis accredited care centers nationwide. The Cystic Fibrosis Foundation provides funding for and accredits more than 110 cystic fibrosis care centers and 55 affiliate programs nationwide, including 96 programs for treating adults with CF.
Source: MHP-Nationwide
Last Updated: 2/7/2020
Virtual VRI View on Map
PO Box 25268
Colorado Springs, CO 80936
Phone: 719-344-2274
Service Categories:
Address:
PO Box 25268
Colorado Springs, CO 80936
Phone: 719-344-2274
Toll Free Phone: 866-440-9140 xe
Eligibility: Deaf and hard of hearing individuals
Services Provided: Video Remote Interpreting is a cutting edge “green” way of providing Sign Language interpreting. All that is required is a computer/webcam, access to high speed internet and to download free webconferencing software. The hearing employer, doctor, counselor, school etc., pays for the service to be in compliance with the Americans with Disabilities Act.
Provider Profiles: computer/webcam based service
Source: MHP-Nationwide
Last Updated: 1/6/2020
3701 San Mateo Blvd. NE, Suite 103
Albuquerque, NM 87110
Phone: 505-872-4774
Service Categories:
Organization Name: Family Voices
(Show others in Organization)
Address:
3701 San Mateo Blvd. NE, Suite 103
Albuquerque, NM 87110
Phone: 505-872-4774
Toll Free Phone: 888-835-5669
Fax: 505-872-4780
Services Provided:

IMPACT provides a variety of educational resources and tools for understanding aspects of raising a health family.

Provider Profiles:

IMPACT stands for Improving Maternal Child Health Programs and Policies so All Children Thrive. IMPACT is a project of national Family Voices.

IMPACT promotes a holistic approach to health and wellness for all families and children including those with special healthcare needs and disabilities.

IMPACT elevates and expands the capacity of family organizations – those that serve all children as well as those that serve children with special needs and disabilities  –  to educate and inform families about lifestyle strategies and choices that positively impact the long-term good health of children. 

IMPACT promotes health and wellness by developing materials and tools and sharing other resources that help families learn skills to build healthy relationships, healthy families, and healthy communities.

Source: MHP-Nationwide
Last Updated: 6/8/2020
8161 Normandale Blvd.
Bloomington, MN 55437
Phone: 952-838-9000
Service Categories:
Address:
8161 Normandale Blvd.
Bloomington, MN 55437
Phone: 952-838-9000
Toll Free Phone: 800-537-2237
Services Provided: Champions for children with disabilities, Parent Advocacy Coalition for Educational Rights, PACER Center expands opportunities and enhances the quality of life of children and young adults with disabilities and their families. PACER is staffed primarily by parents of children with disabilities and works in coalition with 18 disability organizations. A significant Learning Center, Resources, and specifically for Students and Young Adults.
Source: MHP-Nationwide
Last Updated: 1/7/2020
400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
Phone: 650-497-8365
Service Categories:
Address:
400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
Phone: 650-497-8365
Services Provided: Dedicated exclusively to the promotion and protection of children's health through fundraising, grantmaking and providing an informed perspective. Packard Children’s Hospital and Stanford School of Medicine supports clinical care, research, and education to improve the health of children and expectant mothers, locally and worldwide. Programs include Improving Systems of Care for Children with Special Health Care Needs and Elevating the Societal Priority of Children, providing wide-ranging, up-to-date data and research by tracking the status of California's children over time through its website, www.kidsdata.org.
Source: MHP-Nationwide
Last Updated: 1/7/2020
161 N. Clark, Suite 3550
Chicago, IL 60601
Phone: 406-655-9000
Service Categories:
Address:
161 N. Clark, Suite 3550
Chicago, IL 60601
Phone: 406-655-9000
Services Provided:

Since 1950, we've spearheaded efforts to transform the lives of people with muscular dystrophy, ALS, and related neuromuscular diseases. We fund groundbreaking research for promising treatments and provide families with the highest quality care from the best doctors in the country.

Source: MHP-Nationwide
Last Updated: 6/3/2021
1615 M Street NW, Suite 290
Washington, DC 20036
Phone: 202-223-1500
Service Categories:
Address:
1615 M Street NW, Suite 290
Washington, DC 20036
Phone: 202-223-1500
Email: info@GotTransition.org
Services Provided: Dedicated to improving health care transition supports for youth moving into the adult health care system, offers education, resources, tools, and state policy advocacy for youth, families, providers, and states. The Six Core Elements of Health Care Transition 2.0 define the basic components of health care transition support.
Provider Profiles: See resources on http://gottransition.org
Source: MHP-Nationwide
Last Updated: 1/7/2020
115 E. 23rd St., 9th Floor
New York, NY 10010
Service Categories:
Organization Name: Psychology Today
(Show others in Organization)
Address:
115 E. 23rd St., 9th Floor
New York, NY 10010
Services Provided:

National state-based database of mental health professionals. Detailed professional listings for Psychologists, Psychiatrists, Therapists, Counselors, Group Therapy and Treatment Centers in the United States and Canada.

Search by city, insurance, issues, sexuality, gender, age, language, faith, types of therapy, online therapy, psychiatrists, treatment centers, and support groups.

Provider Profiles:

Psychology Today's Therapy Directory is run here Sussex Directories.

Source: MHP-Nationwide
Last Updated: 8/31/2020
107 Commerce Centre Drive, Suite 204
Huntersville, NC 28078
Phone: 704-947-7779
Service Categories:
Address:
107 Commerce Centre Drive, Suite 204
Huntersville, NC 28078
Phone: 704-947-7779
Fax: 704-948-7779
Services Provided:

Committed to full participation of persons with disabilities in post-secondary education. Website resources include civil rights, legal resources, DSS professionals.

Provider Profiles:

Affiliate programs Utah AHEAD, New Mexico AHEAD

Source: MHP-Nationwide
Last Updated: 12/11/2020
Sparta, NJ 07871
Service Categories:
Address:
Sparta, NJ 07871
Services Provided:

Provides practical advice, emotional support and the most up-to-date educational information for families of children and adults with disabilities and special healthcare needs as well as to the physicians, allied health care professionals, and educational professionals. Available for free, as a monthly email. 

Source: MHP-Nationwide
Last Updated: 7/30/2021
800 Eastown Drive, Suite 105
Chapel Hill, NC 27514
Phone: 706-256-2084
Service Categories:
Organization Name: National Respite Locator Service
(Show others in Organization)
Address:
800 Eastown Drive, Suite 105
Chapel Hill, NC 27514
Phone: 706-256-2084
Services Provided: The ARCH National Respite Network includes the National Respite Locator, a service to help caregivers and professionals locate respite services in their community, the National Respite Coalition, a service that advocates for preserving and promoting respite in policy and programs at the national, state, and local levels, and the Lifespan Respite Technical Assistance Center.
Provider Profiles: The ARCH National Respite Network includes summer camps for both children and adults with special needs.

A cooperative agreement with the US Administration for Community Living/ Administration on Aging
Source: Medical Home Portal
Last Updated: 8/6/2019
Service Categories:
Organization Name: Childhood Anxiety Network
(Show others in Organization)
Address:
Email: info@selectivemutism.org
Services Provided:

SMA, part of the Childhood Anxiety Network, is a nonprofit organization dedicated to providing information, resources and support to those impacted by a child with the anxiety disorder known as Selective Mutism (SM).

SMA is the nation’s premier resource for information on SM. Provides a network of professionals, families and affected individuals across the world who understand the struggle of living in silence.

SMA Support Groups by State: list of SMA support groups.

Find a Treating Professional: Directory of professionals that have joined the SMA community.

Source: MHP-Nationwide
Last Updated: 8/24/2020
101 Montgomery Street, Suite 72150
San Francisco, CA 94104
Phone: 415-434-3388 xl
Service Categories:
Organization Name: National Center on Caregiving
(Show others in Organization)
Address:
101 Montgomery Street, Suite 72150
San Francisco, CA 94104
Phone: 415-434-3388 xl
Toll Free Phone: 800-445-8106
Services Provided: Caregiver services, policy and research. Search for state-based resources using the Family Care Navigator.
Provider Profiles: Internet Information Resource
Source: MHP-Nationwide
Last Updated: 3/6/2019
1515 North Courthouse Road, 2nd Floor
Arlington, VA 22201
Phone: 703-341-4100
Service Categories:
Organization Name: Child Care Aware of America
(Show others in Organization)
Address:
1515 North Courthouse Road, 2nd Floor
Arlington, VA 22201
Phone: 703-341-4100
TDD: 866-278-9428
Fax: 703-341-4101
Email: info@childcareaware.org
Eligibility:

All children and families.

Services Provided:

Operates a toll-free referral line and national website where parents and child care providers can receive information about finding, choosing, and paying for child care, and referrals to local child care resource and referral agencies to receive individualized assistance.

Source: MHP-Nationwide
Last Updated: 6/3/2021
530 Fifth Avenue, 18th Floor
New York, NY 10036
Phone: 855-566-5871
Service Categories:
Address:
530 Fifth Avenue, 18th Floor
New York, NY 10036
Phone: 855-566-5871
Services Provided:

Get essential information on costs for thousands of procedures and learn insurance basics. A national independent, nonprofit corporation whose mission is to bring transparency to healthcare costs and health insurance information through comprehensive data products and consumer resources. Search for medical and dental costs.

Provider Profiles:

Internet-based service

Source: MHP-Nationwide
Last Updated: 6/22/2020
110 Magnolia Circle
230 Appleton Place Nashville, TN 37203-5721
Nashville, TN 37203
Phone: 615-322-8240
Service Categories:
Address:
110 Magnolia Circle
230 Appleton Place Nashville, TN 37203-5721
Nashville, TN 37203
Phone: 615-322-8240
Email: kc@vumc.org
Eligibility: Individuals with disabilities
Services Provided:

Resources for individuals with disabilities: Topical List, Printable Resources, Web Resources, Tip Sheets, Video Resources and Toolkit for IDD at Tip Sheets and Resources with Health Watch Tables.

Source: MHP-Nationwide
Last Updated: 10/13/2020
Baltimore, MD
Service Categories:
Organization Name: Social Security Administration
(Show others in Organization)
Address:
Baltimore, MD
TDD: 800-325-0778
Eligibility: SSI denied for medical reasons
Services Provided: For recent applications for Social Security disability benefits or Supplemental Security Income (SSI) that were denied for medical reasons,
request an appeal online and provide documents to support appeal electronically. Individuals may also continue an appeal already started.
Provider Profiles: Internet resource
TDD Phone for Salt Lake City area 800 325 0778
Source: Medical Home Portal
Last Updated: 6/13/2019
4600 Devitt Drive
Cincinnati, OH 45246
Phone: 800-818-7388
Service Categories:
Address:
4600 Devitt Drive
Cincinnati, OH 45246
Phone: 800-818-7388
Toll Free Phone: 800-818-7388
Email: admin@rettsyndrome.org
Services Provided: An organization comprised of parents and friends of those diagnosed with Rett syndrome, providing the latest medical information, aggressively funding the most promising research, offering meaningful support, raising public awareness and advocating for all living with Rett syndrome. Lists resources and clinics by state, national resources, and clinical trials. Resources include: Care Guides, Communication, Adaptive Equipment and Funding, School and Day Programs, Adolescence, Planning for the Future.
Source: MHP-Nationwide
Last Updated: 1/7/2020
201 Chicago Avenue, Unit 200
Minneapolis, MN 55415
Service Categories:
Address:
201 Chicago Avenue, Unit 200
Minneapolis, MN 55415
Eligibility: For patients or caregivers, advocacy groups, health care providers, and supporters.
Services Provided: CNF Family Support and Empowerment Program (FSEP) offers families a direct connection with an experienced, compassionate Peer Support Specialist to help navigate the journey of disease diagnosis, treatment, and management for a child living with a neurologic condition. Includes: Transition of Care, Infantile Spasms Awareness, Respite Care, Sudden Unexpected Death in Epilepsy, Grants and Scholarships, Webinars
Provider Profiles: National, web-based locator for services
Source: MHP-Nationwide
Last Updated: 1/7/2020
2451 Crystal Drive, Suite 900
Arlington, VA 22202
Service Categories:
Address:
2451 Crystal Drive, Suite 900
Arlington, VA 22202
Toll Free Phone: 800-342-2383
Services Provided: We lead the fight against the deadly consequences of diabetes and fight for those affected by diabetes. We fund research to prevent, cure and manage diabetes. We deliver services to hundreds of communities. We provide objective and credible information. We give voice to those denied their rights because of diabetes.

Website offers education, legal rights, health insurance, tips for caregivers, etc.
Source: MHP-Nationwide
Last Updated: 1/6/2020
1004 A O'Reilly Avenue
San Francisco, CA 94129
Phone: 415-800-7777
Service Categories:
Address:
1004 A O'Reilly Avenue
San Francisco, CA 94129
Phone: 415-800-7777
Toll Free Phone: 866-968-6642
Email: info@myotonic.org
Services Provided:

Delivering comprehensive support resources, and driving research to accelerate the discovery of DM therapies. A digital library of educational videos. Find a doctor nationwide locator. Find a support group, including a virtual group. Anesthesia guidelines. Founded by families with DM seeking to help one another.

Provider Profiles:

AKA Myotonic Dystrophy Foundation

Source: MHP-Nationwide
Last Updated: 11/4/2020
1200 Eton Court, NW, Third Floor
Washington, DC 20007
Phone: 202-785-4585
Service Categories:
Address:
1200 Eton Court, NW, Third Floor
Washington, DC 20007
Phone: 202-785-4585
Toll Free Phone: 800-666-6327
Services Provided:

The leading voice and resource of the Fetal Alcohol Spectrum Disorders (FASD) community, and committed to the prevention of prenatal exposure to alcohol, drugs, and other substances known to harm fetal development, and to supporting individuals, families, and communities living with Fetal Alcohol Spectrum Disorders (FASDs) and other preventable intellectual/ developmental disabilities.

Source: MHP-Nationwide
Last Updated: 2/2/2021
4156 Library Road
Pittsburgh, PA 15234-1349
Phone: 412-341-1515
Service Categories:
Address:
4156 Library Road
Pittsburgh, PA 15234-1349
Phone: 412-341-1515
Fax: 412-344-0224
Email: info@LDAAmerica.org
Eligibility: People with disabilities, their parents, teachers, and other professionals
Services Provided: LDA provides support to people with learning disabilities, their parents, teachers and other professionals with cutting edge information on learning disabilities, practical solutions, and a comprehensive network of resources.
Source: MHP-Nationwide
Last Updated: 8/8/2019
Phone: 925-290-8950
Service Categories:
Address:
Phone: 925-290-8950
Email: info@allianceforfertilitypreservation.org
Eligibility: Cancer patients in search of fertility preservation
Services Provided:

A locator tool allows cancer patients and oncology professionals to search for fertility preservation services in their area, and to submit referrals or request appointments through a secure online system.

Source: MHP-Nationwide
Last Updated: 8/11/2020
1504 East Franklin Street
Chapel Hill, NC 27514
Phone: 919-933-9044
Service Categories:
Organization Name: American Cleft Palate Craniofacial Association
(Show others in Organization)
Address:
1504 East Franklin Street
Chapel Hill, NC 27514
Phone: 919-933-9044
Fax: 919-933-9604
Email: admin@cleftline.org
Eligibility:

Open to all.

Services Provided:

Connects individuals and families affected by cleft lip/palate and other craniofacial to team care, providing education, and offerings personal support. Awards College scholarships, research grants, and silent auction. Provides patient/family Connections Conferences and 24 hour Cleftline.

Source: MHP-Nationwide
Last Updated: 6/3/2021
11130 Sunrise Valley Drive Ste 350
Reston, VA 20191
Phone: 703-234-4079
Service Categories:
Address:
11130 Sunrise Valley Drive Ste 350
Reston, VA 20191
Phone: 703-234-4079
Fax: 703-832-4545
Email: info@aedweb.org
Services Provided:

Provides research, educational forums, publications, subject matter experts, and current information on treatment and prevention of eating disorders.

COVID-19 UPDATE: Following all CDC and State guidelines.

  • Specialized Information and Referral
  • Internet Information Resources
  • Disease/Disability Information
Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
11921 Rockville Pike, Suite 300
Rockville, MD 20852
Phone: 800-638-8299
Service Categories:
Address:
11921 Rockville Pike, Suite 300
Rockville, MD 20852
Phone: 800-638-8299
Toll Free Phone: 866-300-2900
Email: helpline@kidneyfund.org
Eligibility: Kidney patients and health care professionals.
Services Provided: Provides health information, education, financial assistance, advocacy, and resources for kidney patients and health care professionals in English and Spanish. Programs for children include the Summer Enrichment Program and the annual Calendar Kids Art Contest.

  • Medical Care Expense Assistance
  • Internet Information Resources
  • Disease/Disability Information
Source: Nationwide Suggest Providers Queue
Last Updated: 10/30/2020
PO Box 105283
Atlanta, GA 30348
Phone: 877-322-8228
Service Categories:
Address:
PO Box 105283
Atlanta, GA 30348
Phone: 877-322-8228
Eligibility:

Free credit reports available to everyone yearly.

Services Provided:

Federal law requires each of the three nationwide consumer credit reporting companies, Equifax, Experian, and TransUnion, provide consumers a free credit report every 12 months if interested. This website allows users to request a credit report from any or all of the companies annually.

COVID-19 UPDATE: Offering free online reports through April 2021

  • Credit Reporting Agencies
Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
PO Box 103
Denver, PA 17517
Phone: 800-939-1019
Service Categories:
Address:
PO Box 103
Denver, PA 17517
Phone: 800-939-1019
Email: info@add.org
Eligibility:

Individuals with ADHD and their families

Services Provided: An international non-profit organization founded twenty-five years ago to help adults with Attention Deficit/Hyperactivity Disorder (ADHD) lead better lives. This volunteer-run organization provides information and resources exclusively for and about adult ADHD.

  • Specialized Information and Referral
  • Health/Disability Related Support Groups
Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
1060 State Road, 2nd Floor
Princeton, NJ 08540
Phone: 646-385-8500
Service Categories:
Address:
1060 State Road, 2nd Floor
Princeton, NJ 08540
Phone: 646-385-8500
Toll Free Phone: 888-288-4762
Email: help@autismspeaks.org
Eligibility:

People with autism, their families and caregivers.

Services Provided:

Provides the latest autism science and information, funding research into the causes, prevention, treatments and cures for autism, awareness of autism spectrum disorders, advocacy for the needs of individuals with autism and their families and an online store.

  • Specialized Information and Referral
  • Disease/Disability Information
Source: Nationwide Suggest Providers Queue
Last Updated: 8/19/2021
One Park Avenue, Suite 1
Portsmouth, RI 02871
Phone: 877-622-2884
Service Categories:
Organization Name: National Autism Association
(Show others in Organization)
Address:
One Park Avenue, Suite 1
Portsmouth, RI 02871
Phone: 877-622-2884
Email: naa@nationalautism.org
Eligibility: No restrictions
Services Provided:

An online resource of six national non-profit autism organizations whose mission is to reduce autism-related wandering incidents and deaths. Provides an online Family Wandering Emergency Plan, Big Red Safety Box program, and Toolkits for caregivers, first-responders and teachers.

  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
10400 Connecticut Ave Ste 500
Kensington, MD 20895-3944
Phone: 800-896-3650
Service Categories:
Address:
10400 Connecticut Ave Ste 500
Kensington, MD 20895-3944
Phone: 800-896-3650
Services Provided: A nonprofit providing resources and information to assist caregivers.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/6/2020
733 Third Avenue, Suite 510
New York, NY 10017
Phone: 800-932-2423
Service Categories:
Address:
733 Third Avenue, Suite 510
New York, NY 10017
Phone: 800-932-2423
Email: info@crohnscolitisfoundation.org
Eligibility:

Crohn's and Colitis patients, their families and medical professionals.

Services Provided:

The Crohn's & Colitis Foundation is a non-profit, volunteer-driven organization dedicated to finding the cures for Crohn's Disease and ulcerative colitis. Provides online and telephone access to disease educational materials, support groups, physician referrals and other resources.

COVID-19 UPDATE: Following all CDC and State guidelines. Please contact to verify if support group is meeting online or in person.

  • Specialized Information and Referral
  • Disease/Disability Information
  • Research Funds
  • Internet Information Resources
  • Health/Disability Related Support Groups
Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
8301 Professional Place West, Ste 230
Hyattsville, MD 20785
Phone: 301-459-3700
Service Categories:
Address:
8301 Professional Place West, Ste 230
Hyattsville, MD 20785
Phone: 301-459-3700
Toll Free Phone: 800-332-1000
Email: ContactUs@efa.org
Wheelchair Access: Full Wheelchair Access
Eligibility:

Individuals with epilepsy, their families and friends.

Services Provided:

Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Learn about epilepsy, types of seizures, triggers, diagnosis, treatment, etc. Offers a seizure diary app self-management tool.  Offers support groups for people with epilepsy.

Spanish-language line: 866-748-8008

Source: Nationwide Suggest Providers Queue
Last Updated: 6/17/2021
465 Industrial Boulevard
London, KY 40750-0001
Phone: 800-318-2596
Service Categories:
Organization Name: Centers for Medicare and Medicaid Services
(Show others in Organization)
Address:
465 Industrial Boulevard
London, KY 40750-0001
Phone: 800-318-2596
TDD: 855-889-4325
Toll Free Phone: 800-318-2596
Eligibility: Anyone looking for health insurance under the Affordable Care Act (ACA). Specifically for those who currently don't have health coverage or looking to change plans.
Services Provided:

The Marketplace is a new way to find health coverage that fits the individual's budget and needs. With one application, the individual can see all options and enroll. Open enrollment runs from November to December; please see the website for specific dates.

COVID-19 UPDATE: check with health insurance company for specific benefits and coverage for COVID-19. Login to update your marketplace application if COVID-19 impacts your income or household. May be able to change your plan if certain situations apply.

  • General Health Insurance Information/Counseling
Source: Nationwide Suggest Providers Queue
Last Updated: 6/2/2021
110 West Road Ste 300
Towson, MD 21204
Phone: 800-296-4433
Service Categories:
Address:
110 West Road Ste 300
Towson, MD 21204
Phone: 800-296-4433
Fax: 410-321-9165
Email: frontdesk@primaryimmune.org
Eligibility:

Individuals with primary immunodeficiency diseases and their families

Services Provided:

A national patient organization dedicated to improving the diagnosis, treatment, and quality of life of persons with primary immunodeficiency diseases through advocacy, education, and research.

COVID-19 HOURS: Following all CDC and State guidelines.

  • Disease/Disability Information
  • Health/Disability Related Support Groups
Source: MHP-Nationwide
Last Updated: 6/3/2021
Joe's House View on Map
505 East 79th Street Ste 17E
New York, NY 10075
Phone: 877-563-7468
Service Categories:
Address:
505 East 79th Street Ste 17E
New York, NY 10075
Phone: 877-563-7468
Email: info@joeshouse.org
Eligibility:

Cancer patients and their loved ones.

Services Provided:

Not an actual house, but a website that lists thousands of places to stay across the country near hospitals and treatment centers that offer a discount for traveling cancer patients and their loved ones. Although Joe's House caters to cancer patients, any patient, regardless of diagnosis, may use the lodging facilities listed.

COVID-19 UPDATE: Many lodging facilities are closed or have limited services. Please call for the most up to date status.

  • Patient/Family Housing
  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
623 West 38th Street, Suite 300
Austin, TX 78705
Phone: 877-236-8820
Service Categories:
Address:
623 West 38th Street, Suite 300
Austin, TX 78705
Phone: 877-236-8820
Toll Free Phone: 855-220-7777
Eligibility: Cancer patients
Services Provided:

Empowers the cancer community to address the unmet needs of cancer survivors. To do so, collaboration, knowledge-sharing, and partnership are encouraged. Develops evidence-based solutions to address both the common and unique problems survivors are facing around the world.

  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 11/4/2020
220 North Green Street
Chicago, IL 60607
Phone: 312-262-6897
Service Categories:
Address:
220 North Green Street
Chicago, IL 60607
Phone: 312-262-6897
Email: hello@anad.org
Services Provided:

The National Association of Anorexia Nervosa and Associated Disorders, Inc. (ANAD) is a non-profit organization working in the areas of support, awareness, advocacy, referral, education, and prevention. ANAD assists people struggling with eating disorders and also provides resources for families, schools and the eating disorder community. Services include ANAD recovery mentorship, ANAD support groups, ANAD annual conference, and ANAD YouTube recovery channel.

  • Internet Information Resources
  • Disease/Disability Information
  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 6/17/2021
55 Chapel Street Ste 200
Newton, MA 02458
Phone: 617-924-9997
Service Categories:
Address:
55 Chapel Street Ste 200
Newton, MA 02458
Phone: 617-924-9997
Fax: 617-924-9998
Eligibility: Anyone interested in brain tumor research, treatment or funding opportunities.
Services Provided: Finding better treatments, and ultimately, a cure for people living with a brain tumor today, and anyone who will be diagnosed tomorrow.

  • Disease/Disability Information
  • Internet Information Resources
  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 10/30/2020
9609 Medical Center Drive
Rockville, MD 20850
Phone: 800-422-6237
Service Categories:
Address:
9609 Medical Center Drive
Rockville, MD 20850
Phone: 800-422-6237
Email: nciinfo@nuh.gov
Wheelchair Access: Complete
Languages Spoken: Spanish
Eligibility:

None

Services Provided:

A free public service providing easy to understand, accurate, up-to-date, and reliable information services to answer cancer-related questions to patients, their friends and family, healthcare providers, or researchers. Includes answers to clinical trial questions, how to find treatment, risk factors, symptoms, diagnostics, and treatment, etc. Leads, conducts, and supports cancer research across the nation to help all people live longer, healthier lives.

COVID-19 UPDATE: Following all CDC and State guidelines.

  • Internet Information Resources
  • Disease/Disability Information
  • Specialized Information and Referral
  • Medical Information Services
Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
4221 Forbes Blvd Suite 270
Lanham, MD 20706
Phone: 301-306-7070
Service Categories:
Organization Name: CHADD
(Show others in Organization)
Address:
4221 Forbes Blvd Suite 270
Lanham, MD 20706
Phone: 301-306-7070
Toll Free Phone: 866-200-8098
Fax: 301-306-7090
Email: nrc@chadd.org
Eligibility:

Open to the public, children and adults with attention-deficit/hyperactivity disorder, ADHD.

Services Provided:

Provides an online clearinghouse for the latest evidence-based information and resources on ADHD. The National Resource Center on ADHD is a program of CHADD.

  • Health/Disability Related Support Groups
  • Specialized Information and Referral
Provider Profiles:

Internet based resource

Source: Nationwide Suggest Providers Queue
Last Updated: 6/2/2021
1500 Rosecrans Avenue Ste 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Service Categories:
Address:
1500 Rosecrans Avenue Ste 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Toll Free Phone: 877-573-9971
Fax: 310-725-0029
Email: info@pancan.org
Languages Spoken: Spanish
Services Provided:

Provides research, patient support, community outreach, and government advocacy. Raises money for direct private funding of research. Supports individuals and communities all across the country in working together to raise awareness and funds to develop more effective treatment options for better patient outcomes. The programs aims to create a sense of hope and community so no one has to face pancreatic cancer alone.

  • Specialized Information and Referral
  • Clinical Trials
  • Disease/Disability Information
Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
3104 E Boundary Ct
Midlothian, VA 23112
Phone: 800-366-7741
Service Categories:
Address:
3104 E Boundary Ct
Midlothian, VA 23112
Phone: 800-366-7741
Toll Free Phone: 800-366-7741
Fax: 804-744-9388
Email: psiops@uneedpsi.org
Languages Spoken: Spanish, other language interpreters available
Eligibility:

Financial assistance for insured and uninsured patients with chronic illnesses.

Services Provided:

Provides online disease and treatment information as well as financial assistance for patients with chronic illnesses who are struggling to keep up with expensive premiums and co-payments. Financial support and guidance available for qualified patients with specific, rare chronic diseases.

COVID-19 UPDATE: Following all CDC and State guidelines.

  • Specialized Information and Referral
  • Medical Care Expense Assistance
Provider Profiles:

Online resources

Source: MHP-Nationwide
Last Updated: 6/3/2021
155 Second Street
Cambridge, MA 02141
Service Categories:
Address:
155 Second Street
Cambridge, MA 02141
Email: support@patientslikeme.com
Services Provided: Patients Like Me is a free health information sharing website for patients. Participants have the opportunity to share both personal stories and health data about their conditions; a network of 500,000 patients.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/6/2020
7304 Mentor Avenue Ste F
Mentor, OH 44060
Phone: 440-951-5357
Service Categories:
Address:
7304 Mentor Avenue Ste F
Mentor, OH 44060
Phone: 440-951-5357
Toll Free Phone: 866-951-5357
Fax: 440-951-5358
Email: information@smartrecovery.org
Eligibility:

Individuals and their families desiring recovery from substance abuse issues.

Services Provided:

Self-Management and Recovery Training (SMART) sponsors face-to-face and daily online meetings for addiction recovery. Online message boards and 24/7 chat rooms are excellent forums to learn about SMART Recovery and obtain addiction recovery support. Registration at message board is required for online meetings.

COVID-19 UPDATE: Fully operational throughout. Please check website often for updates.

  • Alcohol Use Disorder Support Groups
  • Drug Use Disorder Support Groups
  • Families/Friends of Individuals With a Drug Use Disorder Support Groups
  • Families/Friends of Individuals With an Alcohol Use Disorder Support Groups
Source: MHP-Nationwide
Last Updated: 6/3/2021
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
Phone: 973-379-2690
Service Categories:
Address:
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
Phone: 973-379-2690
Toll Free Phone: 800-539-7309
Email: beisenbud@christopherreeve.org
Eligibility: No restrictions
Services Provided: Non-profit foundation which promotes the health and well-being of people living with a spinal cord injury, mobility impairment, and paralysis. The Paralysis Resource Center (PRC) is staffed with information specialists who can provide individualized support via phone/email on any topic related to paralysis, such as what to expect in rehab, the best equipment exchange programs, peer mentoring, educational materials, etc.

  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 10/30/2020
1703 North Beauregard Street
Suite 420
Alexandria, VA 22311
Phone: 202-467-5081
Service Categories:
Address:
1703 North Beauregard Street
Suite 420
Alexandria, VA 22311
Phone: 202-467-5081
Fax: 703-465-5085
Email: info@acb.org
Wheelchair Access: Yes
Eligibility:

Those who are blind or visually impaired, their families, friends, doctors, caregivers, and anyone who works with blind or visually impaired people

Services Provided:

Non-medical information on blindness, and referrals to various sources of help, state services for the blind, and state libraries for the blind.

Resources: Offers a variety of resources, including Job Connection, Blind/Low Vision resources, peer support, and more

Scholarships: Scholarships for freshman, undergraduate, and graduate students. To be eligible for a scholarship, applicants need to be legally blind, maintain a 3.0 GPA to be eligible for most scholarships, be a full-time student (as well as students who work 32 or more hours per week and attend college part time), and be involved in their school/local community.

Programs and Services: Audio Description Project, Advocacy and Governmental Affairs, Radio, and more.

Source: Nationwide Suggest Providers Queue
Last Updated: 6/17/2021
PO Box 14686
Durham, NC 27709-4686
Phone: 919-806-0101
Service Categories:
Address:
PO Box 14686
Durham, NC 27709-4686
Phone: 919-806-0101
Toll Free Phone: 877-MPS-1001
Services Provided: The National MPS Society has a three-part mission: to support research through funding, conferences, and collaboration; to support families through education, fundraising assistance for medical expense assistance, resource guides, and advocacy; and to increase public and professional awareness through publicity, and national and international advocacy.
Source: Nationwide Suggest Providers Queue
Last Updated: 6/5/2019
PO Box 90247
Austin, TX 78709
Phone: 866-331-9474
Service Categories:
Organization Name: National Teen Dating Abuse Helpline
(Show others in Organization)
Address:
PO Box 90247
Austin, TX 78709
Phone: 866-331-9474
TDD: 866-331-8453
Services Provided:

Engages, educates, and empowers young people to prevent and end abusive relationships by offering support, information, referrals, and advocacy to those youth who have questions or concerns about their dating relationships, regardless of sexual orientation (including LGBTQ). Utilizes free and confidential phone, live chat, and texting services, which are available all year 24/7.

COVID-19 UPDATE: Following all CDC and State guidelines.

  • Dating Abuse Hotlines
  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 6/17/2021
8600 Rockville Pike
Bethesda, MD 20894
Phone: 301-594-5983
Service Categories:
Organization Name: U.S. National Library of Medicine
(Show others in Organization)
Address:
8600 Rockville Pike
Bethesda, MD 20894
Phone: 301-594-5983
Fax: 301-402-1384
Email: custserv@nlm.nih.gov
Services Provided:

Online medical information resource directs to information to help answer health questions. Information on drugs displays an illustrated medical encyclopedia, interactive patient tutorials, and latest health news.

Source: Nationwide Suggest Providers Queue
Last Updated: 8/18/2021
1500 Broadway, Suite 1101
New York, NY 10036
Phone: 212-575-6200
Service Categories:
Address:
1500 Broadway, Suite 1101
New York, NY 10036
Phone: 212-575-6200
Text: 741741
Toll Free Phone: 800-931-2237
Fax: 212-575-1650
Email: info@nationaleatingdisorders.org
Wheelchair Access: Yes
Eligibility:

Individuals and families affected by eating disorders.

Services Provided:

Provides information and treatment options for eating disorders.

Confidential Helpline Monday-Thursday (800-931-2237) from 9am to 9pm ET and Friday from 9am to 5pm ET.

24/7 crisis support: text 'NEDA' to 741741

Source: MHP-Nationwide
Last Updated: 6/17/2021
636 Morris Turnpike Suite 3A
Short Hills, NJ 07078
Phone: 973-467-8270
Service Categories:
Organization Name: Christopher and Dana Reeve Foundation
(Show others in Organization)
Address:
636 Morris Turnpike Suite 3A
Short Hills, NJ 07078
Phone: 973-467-8270
Toll Free Phone: 800-225-0292
Fax: 973-912-9433
Email: infospecialist@christopherreeve.org
Services Provided:

Provides information on paralysis related questions and referrals.

Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747
Service Categories:
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747
TDD: 866-569-1162
Email: healthinfo@niddk.nih.gov
Eligibility: Contact for specific information.
Services Provided:

NIDDK research creates knowledge about and treatments for diseases that are among the most chronic, costly, and consequential for patients, their families, and the Nation. Offers clinical trials, financial assistance for researchers, health information, and publications.

Source: Nationwide Suggest Providers Queue
Last Updated: 9/18/2020
2121 K Street NW Ste 200
Washington, DC 20037
Phone: 202-349-1155
Service Categories:
Address:
2121 K Street NW Ste 200
Washington, DC 20037
Phone: 202-349-1155
Toll Free Phone: 800-657-6398
Fax: 202-349-1156
Email: info@lupus.org
Languages Spoken: Spanish
Services Provided:

Improves the quality of life for all people affected by lupus through programs of research, education, support, and advocacy.

  • Health/Disability Related Support Groups
  • Disease/Disability Information
  • Voluntary Health Organizations

Chapter Finder: Find support and connection in your community.

Source: MHP-Nationwide
Last Updated: 6/3/2021
1000 Vermont Avenue, NW, Suite 200
Washington, DC 20005-4903
Phone: 202-815-3129
Service Categories:
Address:
1000 Vermont Avenue, NW, Suite 200
Washington, DC 20005-4903
Phone: 202-815-3129
Email: communications@nmac.org
Eligibility: Contact for specific information.
Services Provided:

Information on HIV/AIDS conferences, news and events, public policy, resources, technical assistance, treatment information and hotlines.

AKA National Minority AIDS Council

Source: Nationwide Suggest Providers Queue
Last Updated: 8/25/2020
1101 Wootton Parkway, Suite 600
Rockville, MD 20852
Phone: 800-444-6472
Service Categories:
Address:
1101 Wootton Parkway, Suite 600
Rockville, MD 20852
Phone: 800-444-6472
Toll Free Phone: 800-444-6472
Fax: 301-251-2160
Languages Spoken: Spanish
Eligibility: Contact for specific information. No cost.
Services Provided: The Office of Minority Health Resource Center is the largest resource and referral service on minority health in the nation. Established in 1987, OMH-RC facilitates the exchange of information available at the Federal, State, and local levels on a wide variety of health topics. OMH-RC offers customized database searches, publications, mailing lists, and referrals that address the needs of American Indian and Alaska Native, African American, Asian American and Pacific Islander and Hispanic populations.
Source: Nationwide Suggest Providers Queue
Last Updated: 8/6/2019
7272 Greenville Avenue
Dallas, TX 75231
Phone: 214-373-6300
Service Categories:
Address:
7272 Greenville Avenue
Dallas, TX 75231
Phone: 214-373-6300
Toll Free Phone: 888-242-2453
Services Provided: Information for individuals, families, and professionals regarding heart-related concerns. Includes general health information, information regarding specific conditions, and information about CPR and First Aid training.

The [https://www.heart.org/en/ American Stroke Association] is a division of the American Heart Association focused on stroke prevention and treatment.
Source: Nationwide Suggest Providers Queue
Last Updated: 2/7/2020
700 North 4th Street
Richmond, VA 23219
Phone: 888-894-6361
Service Categories:
Address:
700 North 4th Street
Richmond, VA 23219
Phone: 888-894-6361
Toll Free Phone: 888-894-6361
Fax: 804-782-4817
Eligibility: Contact for specific information.
Services Provided: National patient hotline for organ transplantation information. Donor cards, booklets, brochures and lists of transplant centers are available. Patient information packets on specific organs are available.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/7/2020
4000 Ridgeway Drive
Birmingham, AL 35209
Service Categories:
Address:
4000 Ridgeway Drive
Birmingham, AL 35209
TDD: 800-900-8086
Toll Free Phone: 800-900-8086
Fax: 205-313-7474
Email: email@nchpad.org
Services Provided: Indoor or outdoor, recreational or competitive, solo or team, easy or intensive, NCHPAD has the resources, contacts, and assistance you need. Look through our site. Let us know what we can do to help YOU become more active.

Leisure Activities/Recreation
Recreational Activities/Sports
Recreational Facilities
Reference/Information
Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
39 Broadway, Suite 2700
New York, NY 10006
Service Categories:
Address:
39 Broadway, Suite 2700
New York, NY 10006
Toll Free Phone: 1-800-465-4837
Services Provided: The mission of American Foundation ALF is to facilitate, advocate and promote education, support and research for the prevention, treatment and cure of liver disease. The Desert Southwest Division serves Arizona, New Mexico, Texas and Utah.

Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
1861 International Drive Suite 200
Mclean, VA 22102
Phone: 202-747-6210
Service Categories:
Address:
1861 International Drive Suite 200
Mclean, VA 22102
Phone: 202-747-6210
Toll Free Phone: 800-688-8765
Fax: 202-747-6208
Services Provided: The National Fragile X Foundation unites the Fragile X community to Enrich lives through educational and emotional support Promote public and professional awareness Advance research toward improved treatments and a cure for Fragile X.

Disease/Disability Information
Information and Referral
Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
3075 Adeline Street, Suite 120
Berkeley, CA 94703
Phone: 510-848-1112
Service Categories:
Organization Name: Through the Looking Glass
(Show others in Organization)
Address:
3075 Adeline Street, Suite 120
Berkeley, CA 94703
Phone: 510-848-1112
TDD: 510-848-1005
Toll Free Phone: 800-644-2666
Fax: 510-848-4445
Wheelchair Access: Full Wheelchair Access
Eligibility: Parents with disabilities who have younger children
Services Provided:

Services Include:

  • Assistive Technology Training
  • Disease/Disability Information
  • Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 2/2/2021
2134 G Street, NW
Washington, DC 200520001
Phone: 202-454-1220
Service Categories:
Address:
2134 G Street, NW
Washington, DC 200520001
Phone: 202-454-1220
Email: askheath@gwu.edu
Services Provided: A national clearinghouse on post-secondary education for individuals with disabilities, managed by The George Washington University Graduate School of Education and Human Development.

HEATH participates in national conferences, training sessions, and workshops, develops training modules, publishes resource papers, fact sheets, directories, and website information, and fosters a network of professionals. askheath@gwu.edu.

Assistive Technology Equipment
Information and Referral
Library Services
Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
1101 15th Street NW, Suite 1212
Washington, DC 20005
Phone: 202-467-5730
Service Categories:
Address:
1101 15th Street NW, Suite 1212
Washington, DC 20005
Phone: 202-467-5730
Toll Free Phone: 202-467-4232
Fax: 202-223-0409
Services Provided: The mission of the Judge David L. Bazelon Center for Mental Health Law is to protect and advance the rights of adults and children who have mental disabilities. The Bazelon Center envisions an America where people who have mental illnesses or developmental disabilities exercise their own life choices and have access to the resources that enable them to participate fully in their communities.

Information and Referral
Library Services
Source: Nationwide Suggest Providers Queue
Last Updated: 8/7/2019
1275 K Street NW Suite 250
Washington, DC 20005
Phone: 202-407-8580
Service Categories:
Address:
1275 K Street NW Suite 250
Washington, DC 20005
Phone: 202-407-8580
Toll Free Phone: 800-782-4747
Fax: 202-289-6801
Services Provided: Leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships.

Find a local chapter, Certified Treatment Centers of Excellence, or support group: [http://www.alsa.org/community/ ALS Association In Your Community]
Source: Nationwide Suggest Providers Queue
Last Updated: 2/7/2020
32 Laight Street, Second Floor
New York, NY 10013
Phone: 212-545-7510
Service Categories:
Address:
32 Laight Street, Second Floor
New York, NY 10013
Phone: 212-545-7510
Toll Free Phone: 888-575-7373
Eligibility: Individuals with learning disabilities
Services Provided: Aims to ensure success for all individuals with learning disabilities in school, at work and in life. We:1) connect parents and others with resources, guidance and support so they can advocate effectively for their children; 2) deliver evidence-based tools, resources and professional development to educators to improve student outcomes, and 3) develop policies and engage advocates to strengthen educational rights and opportunities.

Information and Referral
Library Services
Special Education Assessment
Speech and Language Evaluations
System Advocacy
Scholarships for two graduating high school seniors with documented learning disabilities and/or ADHD who are pursuing post-secondary education.
Source: Nationwide Suggest Providers Queue
Last Updated: 8/8/2019
1301 Pennsylvania Ave NW, Suite 1000
Washington, DC 20004
Phone: 202-662-0600
Service Categories:
Address:
1301 Pennsylvania Ave NW, Suite 1000
Washington, DC 20004
Phone: 202-662-0600
Fax: 202-393-2072
Services Provided: Safe Kids Worldwide provides general information on child safety and injury prevention. Education materials are available on such topics as car seats inspections, seat belt safety and helmet safety for bicyclists.
Source: Nationwide Suggest Providers Queue
Last Updated: 8/8/2019
5455 Wilshire Blvd, Suite 1903
Los Angeles, CA 90036-0007
Phone: 704-364-0016
Service Categories:
Address:
5455 Wilshire Blvd, Suite 1903
Los Angeles, CA 90036-0007
Phone: 704-364-0016
Services Provided: Dedicated to myalgic encephalomyelitis ME/Chronic Fatigue Syndrome CFS also known as chronic fatigue and immune dysfunction syndrome CFIDS. Our mission is to make ME/CFS widely understood, diagnosable, and treatable. We will do this by stimulating participatory, patient centered research aimed at the early detection, objective diagnosis and effective treatment of ME/CFS through expanded public, private and commercial investment.

Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 8/8/2019
976 Lake Baldwin Lane, Suite 104
Orlando, FL 32814
Phone: 407-895-0802
Service Categories:
Address:
976 Lake Baldwin Lane, Suite 104
Orlando, FL 32814
Phone: 407-895-0802
Services Provided: Provides parents and expectant parents with information about birth defects and support services for their children; a parent-matching program that links families who have children with similar birth defects; sponsors the National Birth Defect Registry, a research project that studies associations between birth defects and exposures to radiation, medication, alcohol, smoking, chemicals, pesticides, lead, mercury, dioxin and other environmental toxins.

Phone: 407 566-8304, 9-5 EST, Mon-Fri or mail by writing to BDRC, 800 Celebration Ave, Suite 225, Celebration FL 34747

Information and Referral
Parent Support Groups
Supported Living Services for Adults with Disabilities
Source: Nationwide Suggest Providers Queue
Last Updated: 8/12/2019
300 Mansell Court Suite 108
Roswell, GA 30076
Phone: 770-604-9500
Service Categories:
Address:
300 Mansell Court Suite 108
Roswell, GA 30076
Phone: 770-604-9500
Toll Free Phone: 800-232-6372
Fax: 770-604-9898
Services Provided: The oldest national organization for people with Down syndrome, their families, and the professionals who work with them. We provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome, and work to create a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome.

Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 1/6/2020
141 West Jackson Boulevard, Suite 1400A
Chicago, IL 60604
Phone: 800-221-6827
Service Categories:
Address:
141 West Jackson Boulevard, Suite 1400A
Chicago, IL 60604
Phone: 800-221-6827
Toll Free Phone: 800-221-6827
Fax: 312-726-1494
Eligibility: Autism and other disabilities
Services Provided:

Provides exceptional services, education, outreach, and advocacy so that people living with autism and other disabilities can live, learn, work and play in our communities.

Information and Referral
Library Services

Source: Nationwide Suggest Providers Queue
Last Updated: 8/14/2020
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484
Service Categories:
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484
TDD: 301-565-2966
Toll Free Phone: 877-226-4267
Fax: 301-718-6366
Email: NIAMSinfo@mail.nih.gov
Wheelchair Access: No Access
Services Provided:

Support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, the training of basic and clinical scientists to carry out this research, and the dissemination of information on research progress in these diseases

Information and Referral

Source: Nationwide Suggest Providers Queue
Last Updated: 9/18/2020
6001 Executive Boulevard Suite 3309
Bethesda, MD 20892
Phone: 301-496-5751
Service Categories:
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
6001 Executive Boulevard Suite 3309
Bethesda, MD 20892
Phone: 301-496-5751
Email: sofrankm@mail.nih.gov
Services Provided:

Conducts, fosters, coordinates, and guides research on the causes, prevention, diagnosis, and treatment of neurological disorders and stroke, and supports basic research in related scientific areas. Collects and disseminates research information related to neurological disorders.

Information and Referral
Library Services

Source: Nationwide Suggest Providers Queue
Last Updated: 9/18/2020
2600 Fernbrook Lane Suite 119
Minneapolis, MN 554474752
Phone: 763-553-0020
Service Categories:
Address:
2600 Fernbrook Lane Suite 119
Minneapolis, MN 554474752
Phone: 763-553-0020
Fax: 763-553-0167
Email: naf@ataxia.org
Wheelchair Access: Access w/o Special Facilities
Services Provided: The National Ataxia Foundation facilitates support groups for those with hereditary and sporadic ataxia. The Foundation also provides information about ataxia, current research activities and
a listing of neurologists in the United States who see patients with ataxia.

Family Support Centers/Outreach
Information and Referral
Support Groups
Source: Nationwide Suggest Providers Queue
Last Updated: 1/6/2020
200 First Ave NW Suite 505
Hickory, NC 28601
Phone: 828-855-1623
Service Categories:
Address:
200 First Ave NW Suite 505
Hickory, NC 28601
Phone: 828-855-1623
Toll Free Phone: 866-672-9466
Fax: 828-855-1672
Email: elizabeth.green@driver-ed.org
Services Provided:

The primary professional organization in this specialized area, encouraging equipment development to maximize the transportation options for persons with disabilities. To find a driver rehabilitation specialist in or near your area, please visit our website.

Driving Safety Education

Source: Nationwide Suggest Providers Queue
Last Updated: 1/19/2021
1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: 914-428-7100
Service Categories:
Address:
1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: 914-428-7100
Fax: 914-428-8203
Services Provided:

Seeks to improve the health of babies by preventing birth defects and reducing infant mortality. Campaigns for Healthier Babies, which includes programs of research, community service, education and advocacy.

Information and Referral
Library Services

Source: Nationwide Suggest Providers Queue
Last Updated: 10/30/2020
505 Eighth Avenue, Suite 902
New York, NY 10018
Phone: 212-242-1968
Service Categories:
Address:
505 Eighth Avenue, Suite 902
New York, NY 10018
Phone: 212-242-1968
Toll Free Phone: 800-345-4372
Fax: 212-239-3430
Email: dbrown@hdsa.org
Services Provided: Dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research.

Information and Referral
Library Services
Peer Counseling
Source: Nationwide Suggest Providers Queue
Last Updated: 8/12/2019
315 West 39th Street, Suite 701
New York, NY 10018
Phone: 212-279-1066
Service Categories:
Address:
315 West 39th Street, Suite 701
New York, NY 10018
Phone: 212-279-1066
Fax: 212-279-2066
Email: info@famdys.org
Services Provided:

Supporting treatment and research for familial dysautonomia. FD is a hereditary disease of the sensory and autonomic nervous systems.

Information and Referral
Library Services

Source: Nationwide Suggest Providers Queue
Last Updated: 11/4/2020
Male Survivor View on Map
350 Central Park West, Suite 1H
P.O. Box 276, Long Valley, NJ 07853
New York, NY 10025
Service Categories:
Address:
350 Central Park West, Suite 1H
P.O. Box 276, Long Valley, NJ 07853
New York, NY 10025
Eligibility: Males 14 and up, overcoming sexual victimization.
Services Provided:

MaleSurvivor fosters a healing community where tens of thousands of men from more than 200 countries come together to find support, information and — most importantly — hope. Services include online forum, support groups, find a therapist, and resources for family members and loved ones of victims.

Support Groups: Find support groups, events, and reading recommendations.

Find a Therapist: Search clinics and clinicians by name or location.

For parents: Resources for parents of sexual abuse survivors.

Source: MHP-Nationwide
Last Updated: 10/5/2020
1500 Dawson Road
Merry Acres Executive Building
Albany, GA 31707
Phone: 229-518-2680
Service Categories:
Address:
1500 Dawson Road
Merry Acres Executive Building
Albany, GA 31707
Phone: 229-518-2680
Toll Free Phone: 888-432-7899
Fax: 229-518-3879
Email: info@mendedhearts.org
Eligibility: Patients and families of children with congenital heart disease.
Services Provided: Mended Little Hearts services include: peer support and education, education resources, hospital outreach, CHD awareness, community health education, online community, and advocacy. Locator for a chapter nearby.
Source: Nationwide Suggest Providers Queue
Last Updated: 9/10/2019
733 Third Avenue
New York, NY 10017
Phone: 800-344-4867
Service Categories:
Address:
733 Third Avenue
New York, NY 10017
Phone: 800-344-4867
Toll Free Phone: 800-344-4867
Eligibility: Individuals with MS and their families
Services Provided: Information, advocacy, research, and referral for individuals with MS and their families. Local chapters for local information, doctors, resources, and events.
Source: Nationwide Suggest Providers Queue
Last Updated: 9/10/2019
PO Box 8126
Gaithersburg, MD 20898-8126
Phone: 301-251-4925
Service Categories:
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
PO Box 8126
Gaithersburg, MD 20898-8126
Phone: 301-251-4925
TDD: 888-205-3223
Toll Free Phone: 888-205-2311
Fax: 301-251-4911
Languages Spoken: Spanish
Services Provided:

GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic disease. In addition to website-based information you may contact a GARD Information Specialist. Also, GARD develops guides with tips on general topics, important resources, and answers to questions that patients, their families, and friends often ask us.

Provider Profiles:

GARD is a program of the National Center for Advancing Translational Sciences (NCATS) and is funded by two parts of the National Institutes of Health (NIH): NCATS and the National Human Genome Research Institute (NHGRI).

Source: Nationwide Suggest Providers Queue
Last Updated: 9/18/2020
16360 Roscoe Blvd Suite 100
Van Nuys, CA 91406
Phone: 818-892-1616
Service Categories:
Address:
16360 Roscoe Blvd Suite 100
Van Nuys, CA 91406
Phone: 818-892-1616
Toll Free Phone: 800-777-8189
Fax: 818-892-1611
Email: info@spondylitis.org
Services Provided:

An exhaustive library of informational materials on worldwide developments in spondylitis,
A state by state locator to search for a rheumatologist.
Accessibility Information
Specialized Information and Referral
Support Groups

Source: Nationwide Suggest Providers Queue
Last Updated: 8/31/2020
PO Box 1102
Olney, MD 20830
Service Categories:
Address:
PO Box 1102
Olney, MD 20830
Toll Free Phone: 877-588-7904
Fax: 630-604-6078
Email: thyca@thyca.org
Languages Spoken: Spanish
Eligibility:

Thyroid cancer patients, survivors, caregivers and medical professionals.

Services Provided:

Provides current information about thyroid cancer and support services available to people at any stage of testing, treatment, or lifelong monitoring for thyroid cancer, as well as their caregivers. Receives ongoing input and review from numerous thyroid cancer specialists.

COVID-19 UPDATE: Some groups are being held virtually; please call or visit website to verify.

  • Internet Information Resources
  • Specialized Information and Referral
  • Health/Disability Related Support Groups
Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
300 Rosewood Drive Suite 105
Danvers, MA 01923
Phone: 978-463-5843
Service Categories:
Address:
300 Rosewood Drive Suite 105
Danvers, MA 01923
Phone: 978-463-5843
Fax: 978-463-5809
Eligibility: Those affected by scleroderma and their families.
Services Provided: Raise funds and awareness for support, education and research.
Provides educational and emotional support, stimulates and support research designed to identify the cause and cure for scleroderma, and improve methods of treatment; and enhances the public's awareness of this disease.
Chapters and Support Groups may be located in Resources.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/9/2020
7918 Jones Branch Drive, Suite 300
Mc Lean, VA 22102
Phone: 703-556-7172
Service Categories:
Address:
7918 Jones Branch Drive, Suite 300
Mc Lean, VA 22102
Phone: 703-556-7172
Toll Free Phone: 866-668-2566
Fax: 703-506-3266
Email: info@resolve.org
Eligibility: Open to persons struggling with infertility or seeking information on infertility.
Services Provided:

Improving the lives of women and men living with the disease of infertility by providing free support to anyone in need, advocating for increased access to all family building options, and reducing the stigma of this disease through public education.

  • Specialized Information and Referral
  • Infertility Support Groups
Source: Nationwide Suggest Providers Queue
Last Updated: 10/13/2020
MA
Service Categories:
Organization Name: Boston Children's Hospital
(Show others in Organization)
Address:
MA
Email: vaccine@healthmap.org
Services Provided:

General vaccine information and finder.

FAQs about vaccines, including general vaccine safety, and specific vaccines.

Find Vaccine: Locate vaccines by type and location. Call first to schedule an appointment and verify vaccine supplies.

Provider Profiles:

Project of:

  • Boston Children's Hospital
  • Centers for Disease Control and Prevention (CDC)
  • Harvard Medical School
  • HealthMap
Source: MHP-Nationwide
Last Updated: 11/16/2020
716 Soquel Avenue, Suite A
Santa Cruz, CA 95062
Phone: 831-457-1004
Service Categories:
Address:
716 Soquel Avenue, Suite A
Santa Cruz, CA 95062
Phone: 831-457-1004
Fax: 831-427-5541
Email: info@bfrb.org
Services Provided:

Provides and online resources for coping with body-focused repetitive behaviors (like hair pulling and skin picking). Website is designed for those with these behaviors, family members, medical and mental health professionals, and others interested in learning about this often-misunderstood disorder.

Services Include:

  • Specialized Information and Referral
  • Therapist Directory
  • Support Group
Source: Nationwide Suggest Providers Queue
Last Updated: 2/19/2021
PO Box 524
Crown Point, IN 46308
Phone: 219-789-9874
Service Categories:
Address:
PO Box 524
Crown Point, IN 46308
Phone: 219-789-9874
Toll Free Phone: 800-328-8476
Email: info@aspergersyndrome.org
Services Provided:

An online-only resource for families and medical professionals who deal with the challenges of Asperger Syndrome, Autism, and Pervasive Developmental Disorder / Not Otherwise Specified. (PDD/NOS)

  • Health/Disability Related Support Groups
  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
901 Moorefield Park Drive, Suite 100
Richmond, VA 23236
Phone: 804-327-1111
Service Categories:
Address:
901 Moorefield Park Drive, Suite 100
Richmond, VA 23236
Phone: 804-327-1111
Email: info@caregiverslibrary.com
Eligibility:

Caregivers, seniors and employers

Services Provided:

The National Caregivers Library contains online information and resources to assist caregivers and seniors with useful forms, checklists, and topic-specific external resources. The resources are made available at no cost through alliances with professionals, businesses, and other agencies serving seniors and their caregivers with a variety of services.

  • Specialized Information and Referral
Provider Profiles:

Internet resource

Source: Nationwide Suggest Providers Queue
Last Updated: 6/2/2021
Organization Name: American Bar Association
(Show others in Organization)
Address:
321 North Clark Street
Chicago, IL 60654
Toll Free Phone: 800-285-2221
Email: Service@americanbar.org
Services Provided:

Improves the health and well-being of vulnerable populations in partnership with the medical community through the work of volunteer attorneys.

Local programs can be identified using Directory of Programs.

Source: MHP-Nationwide
Last Updated: 9/9/2021