Transition Issues
Birth to Three
School Transitions
Hospital to Home/Community
Transition to Adulthood
Where to Find More Transition Information on the Portal
Resources
Information & Support
For Professionals
Health Care Transition for Youth and Families (Got Transition)
A 6-step approach to help individuals gain independent health care skills, prepare for an adult model of care, and transfer
to new providers; provided by the Maternal and Child Health Bureau and The National Alliance to Advance Adolescent Health.
Health Care for Adults with Intellectual & Developmental Disabilities - Toolkit for Clinicians (Vanderbilt)
A compilation of knowledge resources, checklists, "Health Watch Tables" for autism, Down syndrome, fragile X, Prader-Willi,
Williams syndrome, and 22q11.2 deletion syndrome, and other resources developed for primary care providers of adults with
developmental and intellectual disabilities; Kennedy Center for Excellence in Developmental Disabilities.
Coding for Transition-related Services (GotTransition.org) ( 642 KB)
Detailed overview of CPT coding options for the provision of transition-related services, from GotTransition.org.
Transitions (National Center for Medical Home Implementation)
Information for clinicians about transitioning pediatric patients to adult health care. Includes links to AAP guidance, videos,
tools, and resources
Competencies for Young People Transitioning (TEACH) ( 24 KB)
A suggested list of competencies that young adults should have as they transition to post-secondary school or work. Topics
include health condition, medical providers, insurance, independent living, recreation, and other general skills; from the
Kentucky TEACH Project.
Transition Timeline (Shriners Hospitals for Children) ( 40 KB)
A sample of a clinician’s checklist for patients 16-20 years of age to monitor status of transition topics, including those
related to school, work, health care, transportation, and more.
Parent's/Caregiver's Transition Worksheet (Utah Family Voices) ( 52 KB)
A printable worksheet to help parents and caregivers determine strengths and needs to help their youth transition to adulthood.
Life Span Skills for Health ( 95 KB)
For providers, this list includes skills that youth and young adults should develop as they change roles and take charge of
their own healthcare, from understanding their condition to managing appointments and medications. From Healthy and Ready
to Work.
Checklist for Transition (HRTW) ( 96 KB)
A concise checklist (dated 2002 but still useful) for practices to review their transition system for young adults moving
to adult care; Healthy & Ready to Work National Resource Center.
A Guide for Health Care Providers: Transition Planning for Adolescents with Special Health Care Needs and Disabilities
Information and checklist for providers to help youth transition to adulthood. Includes the topics of health care, law, education,
employment, recreation, and more. Companion manual for families and teens available; produced by the Institute for Community
Inclusion at Children's Hospital, Boston 2000.
Transition Resources for Providers, University of Illinois
Division of Specialized Care for Children (DSCC), from by the University of Illinois at Chicago. Includes general information
for providers on transition from childhood to adulthood, including fact sheets, tools, transition timelines, and other materials.
Adolescent Health Transition Project (University of Washington)
Resource for adolescents with special health care needs, chronic illnesses, and physical or developmental disabilities to
understand the transitioning of healthcare and education to adulthood systems; Center on Human Development and Disability
at the University of Washington.
Transition Coalition (University of Kansas)
Free, web-based training about transition to adulthood, especially relevant for new care coordinators; University of Kansas,
Department of Special Education.
Tools
Pediatric to Adult Care Transitions Initiative (ACP)
Condition-specific transition tools for clinicians transitioning patients with intellectual/developmental disabilities, congenital
heart disease, type 1 diabetes, Turner syndrome, sickle cell disease, end-stage renal disease, juvenile idiopathic arthritis,
and others; from the American College of Physicians, in collaboration with the American Academy of Pediatrics.
Transition Referral Form ( 22 KB)
Sample form to track referrals to other agencies providing transition services. From the Collaborative Medical Home Project.
Transition Toolkit for Clinicians (gottransition.org) ( 765 KB)
14-page guide with questions for adolescents/youth and their parents/caregivers to assess their view of the importance of
transition and their confidence in managing it, along with recommended actions to reinforce and support them; published 2018
by GotTransition, a program of The National Alliance to Advance Adolescent Health.
Helpful Articles
Blum RW.
Introduction. Improving transition for adolescents with special health care needs from pediatric to adult-centered health
care.
Pediatrics.
2002;110(6 Pt 2):1301-3.
PubMed abstract
Olsen DG, Swigonski NL.
Transition to adulthood: the important role of the pediatrician.
Pediatrics.
2004;113(3 Pt 1):e159-62.
PubMed abstract
Cooley WC, Sagerman PJ.
Supporting the health care transition from adolescence to adulthood in the medical home.
Pediatrics.
2011;128(1):182-200.
PubMed abstract / Full Text