Self-Advocacy
- deciding to paint your bedroom black
- choosing to have a medical procedure
- asking your boss to be treated equally in your workplace
Understanding Yourself and Your Needs
Being an Advocate for Yourself
Value yourself and your rights
- Understand that your rights, thoughts, feelings, needs, and desires are just as important as everyone else's. But remember they are not more important than anyone else's, either.
- When talking to someone, don’t forget to listen and ask questions! It’s important to understand the other person’s point of view.
- Believe that you deserve to be treated with respect and dignity at all times, and so does everyone else.
- Don’t be afraid to speak up and describe the problems you’re facing. Not talking about it just makes the issue unclear.
- Don’t be afraid to disagree with others, even if it means upsetting the peace.
- Hold everyone, including yourself, accountable for following through on decisions and actions.
Identify your needs and wants, and ask for them to be taken care of
- Don't wait for someone to know what you need or expect others to advocate for you.
- Come up with ideas about how you can get your needs met while respecting other’s time and abilities.
- Don’t give up because the process is long or the situation is hard.
- Don’t accept “NO” from someone who doesn’t have the authority to say “YES.” You have the right to speak with a manager or director if you feel you need to.
Express negative thoughts and feelings in a healthy and positive way
- Allow yourself to be upset or angry, but always be respectful.
- Do say what's on your mind, but in a way that doesn’t hurt or blame someone else.
- Control your emotions as much as possible by thinking over your ideas before speaking.
- Stand up for yourself with people who challenge you and/or your rights.
- Remember that firm communication is NOT forceful communication.
Receive criticism and compliments in a positive way
- Accept compliments kindly.
- Know that it is okay to make mistakes and ask for help, these are learning opportunities.
- Accept feedback positively. Be prepared to say you don't agree, but do not get defensive or angry.
- Sometimes you will have to agree to disagree on certain things.
Always be ready
- Get ready for meetings ahead of time.
- Be informed about on the topic you’ll be discussing. Do research, and listen, so you can find out others’ thoughts on the issue.
- Take notes and keep records of all meetings, conversations and correspondence.
- Work together: having partners goes a long way.
- Look at problems and provide suggested solutions.
- Keep an open mind. Come up with creative solutions to problems and challenges.
Successful Self-Advocacy
Resources
Information & Support
For Parents and Patients
Self-advocacy Online
This website offers groups, stories, guidance, and a series of videos about learning self-advocacy skills
Advocating Change Together (ACT)
A grassroots disability rights organization run by and for people with developmental and other disabilities. ACT's mission
is to help people across disabilities to see themselves as part of a larger disability rights movement and make connections
to other civil and human rights struggles.
Center for Self-Determination
Highly interactive working collaborative of individuals and organizations committed to the principles of self-determination.
The purpose of the collaborative is to change the nature of the support and service system for individuals with disabilities,
using the principles of self-determination to help all persons create the lives they want, connected to and with their communities.
Center for Parent Information and Resources (DOE)
Parent Centers in every state provide training to parents of children with disabilities and provide information about special
education, transition to adulthood, health care, support groups, local conferences, and other federal, state, and local services.
See the "Find Your Parent Center Link" to find the parent center in your state; Department of Education, Office of Special
Education.
National Council on Independent Living (NCIL)
Provides information and advocacy for independent living with links to locate state or local independent living centers.
The Arc of the United States
Provides fact sheets, webinars, and a lot of other information on public policy and disability rights for families. The Arc
works to protect people with intellectual and developmental disabilities and their families on the federal level through public
policy efforts. Many local chapters are available.
TASH
TASH is a national organization advocating for disability rights and overcoming obstacles, combining research with advocacy.
National Disability Rights Network
Provides legally based advocacy services to people with disabilities in the United States and is a good national resource
for looking into the legal rights of people with disabilities.
Youth Leadership Toolkit
Guidebook to go with videos by and for youth and young adults to help them learn about employment and related topics in an
easy access online format. Developed by the Center for Persons with Disabilities and the Becoming Leaders for Tomorrow Project
in collaboration with the Independent Living Research Utilization (ILRU). Videos available on YouTube at https://www.youtube.com/playlist?list=PLp3WC9HvngxfKsG-YdS0LwzNTHcnnlW5Q.
Authors & Reviewers
Contributing Authors: | Robin Pratt |
Barbara Ward, RN BS | |
Joyce Dolcourt | |
Kristine Ferguson | |
Teresa Such-Neibar, DO | |
Lynn Foxx Pease | |
Helen Post | |
Roz Welch | |
Reviewer: | Tina Persels |
2014: update: Gina Pola-MoneyCA; Shena McAuliffe, MFAR |
2008: first version: Alfred N. Romeo, RN, PhDR |