Advocate for increased access to healthcare for women and children and other maternal child health issues.

The NVRDAC’s mission is to improve the quality of life and support care for Nevadans affected by rare diseases through collaboration, education, support, and advocacy. Our council seeks to advocate for Nevadans impacted by rare diseases as well as identify the overall impact these diseases have in our community.

Age of patient, birth to 29 years old

Provides no cost health advocacy and health education services for children, teens, and young adults living chronic illness. Advocates listen, learn about needs, and create a plan to help you thrive. All services are customized to the unique needs of the patient and their family. A collaborative approach to healthcare and works with your medical team, social service providers, education team, and advocates in other fields. Advocates provide in-person services in Southern Nevada at the location that works best for client (home, doctors office, coffee shop). Outside of Southern Nevada advocates provide services via a virtual platform.<br />Also has several community partnerships and will refer patients/families to additional services as needed.<br /><br />

Provides objective and credible information, advocacy and research for diabetes. Website offers education, legal rights, health insurance, tips for caregivers, etc. Provides camps for children with Type I diabetes and with or at risk of developing Type II diabetes.

Provide support, resources, education, and advocacy for those who are impacted by low vision and visual impairment.

Promotes quality of life for people with ostomies and continent diversions through information, support, advocacy, and collaboration. Hosts a national network for bowel and urinary diversion support groups in the United States. 

Patients and families of children with congenital heart disease.

Provides ongoing peer-to-peer support, education, and advocacy to heart patients and their families. Local chapter locator available on website.

Services Include:

• peer support and education
• education resources
• hospital outreach
• CHD awareness
• community health education
• online community
• advocacy

Pursuing recognition, policy and solutions for the surging population of individuals, families and caregivers affected by severe forms of autism and related disorders.

Services Include:

• Education to the public
• Platform for policy discourse and services
• Education for policy makers
• Promote research
• Promote awareness and acceptance

Provides support for individuals with genetic aortic and vascular conditions, including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes.

A collaborative network of nonprofits, corporations, and individuals from 39 states and nine countries, supporting and serving the childhood cancer community.  They work together around the interests of: Advocacy, Awareness, Research & Treatment, Family Support, and Survivorship.

The Hope Portal is a searchable database which connects childhood cancer families to the information and vast array of support resources